ArticleEuropean journal of epidemiology2009
The accuracy of discharge diagnosis coding for Amyotrophic Lateral Sclerosis in a large teaching hospital.
Article in European journal of epidemiology, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 3 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 3 syntheses or guidelines pooled it, 28 citations in OpenAlex.
- Validity of Algorithms for Identification of Individuals Suffering from Chronic Noncancer Pain in Administrative Databases: A Systematic Review.Pain medicine (Malden, Mass.) · 2020Pooled it
- Accuracy of routinely-collected healthcare data for identifying motor neurone disease cases: A systematic review.PloS one · 2017Pooled it
- Recommendations for optimal ICD codes to study neurologic conditions: a systematic review.Neurology · 2012Pooled it
- Severe head injury and amyotrophic lateral sclerosis.Amyotrophic lateral sclerosis & frontotemporal degeneration · 2013Trial
- Rurality modifies the association between symptoms and the diagnosis of amyotrophic lateral sclerosis.Amyotrophic lateral sclerosis & frontotemporal degeneration · 2024Article
- Registration of Amyotrophic Lateral Sclerosis: Validity in the Danish National Patient Registry.Clinical epidemiology · 2024Article
- Adherence to practice parameters in Medicare beneficiaries with amyotrophic lateral sclerosis.PloS one · 2024Article
- Anticholinergic burden and fractures: a protocol for a methodological systematic review and meta-analysis.BMJ open · 2019Article
- Risk factors in Swedish young men for amyotrophic lateral sclerosis in adulthood.Journal of neurology · 2018Article
- Association between diabetes and amyotrophic lateral sclerosis in Sweden.European journal of neurology · 2015Article
- Comparison of diagnoses of amyotrophic lateral sclerosis by use of death certificates and hospital discharge data in the Danish population.Amyotrophic lateral sclerosis & frontotemporal degeneration · 2015Article
- Risk of Amyotrophic Lateral Sclerosis in Patients With Diabetes: A Nationwide Population-Based Cohort Study.Journal of epidemiology · 2015Article
- The use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia.Genetics in medicine : official journal of the American College of Medical Genetics · 2014Article
- Age-period-cohort analysis of trends in amyotrophic lateral sclerosis in Denmark, 1970-2009.American journal of epidemiology · 2013Article
- The Rotterdam Study: 2012 objectives and design update.European journal of epidemiology · 2011Article
- The Shanghai Changfeng Study: a community-based prospective cohort study of chronic diseases among middle-aged and elderly: objectives and design.European journal of epidemiology · 2010Article
- New studies, technology, and the progress of epidemiology.European journal of epidemiology · 2010Article
- Diagnostic validity of hospital discharge codes in the ascertainment of amyotrophic lateral sclerosis.European journal of epidemiology · 2010Article
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Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
To evaluate the accuracy of hospital discharge data as a source of Amyotrophic Lateral Sclerosis (ALS) cases for epidemiological studies or disease registries, a validation study was performed. All records of patients discharged in 2005 and 2006 with principal or secondary International Classification of Diseases, 9th rev., Clinical Modification (ICD 9 CM) diagnosis code of ALS (335.20), other anterior horn cell disease (335), spinal cord disease (336), hereditary and idiopathic peripheral neuropathy (356), inflammatory and toxic neuropathy (357), myoneural disorders (358), muscular dystrophies and myopathies (359), were selected from the electronic archive of discharge data of the University Hospital of Udine, Friuli Venezia Giulia Region, North East Italy. Corresponding clinical documentation was reviewed to ascertain the presence of El Escorial criteria, the gold standard. Sensitivity of the ICD 9 CM discharge code 335.20 was 93% (95%CI: 82-99%) and decreased to 91% (95%CI: 77-98%) when suspect ALS was excluded. Specificity was 99% (95%CI: 97-99%). The ICD 9 CM discharge code 335.20 can identify a high percentage of hospitalizations of patients truly affected by ALS and of patients with no ALS, among selected neurological diagnostic codes. To ensure complete ALS case ascertainment, prospective population-based registries or epidemiologic studies require active prospective surveillance and use of multiple sources, among them hospital discharge archives can provide accurate information.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.