ArticleMedicine, health care, and philosophy2009
Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel.
Article in Medicine, health care, and philosophy, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
16 citing papers in PubMed, 40 citations in OpenAlex.
- Attitudes towards genetic testing: The role of genetic literacy, motivated cognition, and socio-demographic characteristics.PloS one · 2023Article
- The emergence of temporality in attitudes towards cryo-fertility: a case study comparing German and Israeli social egg freezing users.History and philosophy of the life sciences · 2022Article
- Online BRCA1/2 screening in the Australian Jewish community: a qualitative study.Journal of community genetics · 2020Article
- 'There is no such thing as getting sick justly or unjustly' - a qualitative study of clinicians' beliefs on the relevance of personal responsibility as a basis for health prioritisation.BMC health services research · 2020Article
- "…This Has to Do With My Identity. And I Don't Want to Make it Totally Transparent." Identity Relevance in the Attitudes of Affected People and Laypersons to the Handling of High-Throughput Genomic Data.Frontiers in sociology · 2020Article
- German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192).Frontiers in genetics · 2020Article
- Familial communication and cascade testing among relatives of BRCA population screening participants.Genetics in medicine : official journal of the American College of Medical Genetics · 2018Article
- Patient Representation and Advocacy for Alzheimer Disease in Germany and Israel.Journal of bioethical inquiry · 2018Article
- Population screening for BRCA1/BRCA2 mutations: lessons from qualitative analysis of the screening experience.Genetics in medicine : official journal of the American College of Medical Genetics · 2017Article
- Saving or Subordinating Life? Popular Views in Israel and Germany of Donor Siblings Created through PGD.The Journal of medical humanities · 2017Article
- Patients' Attitudes Towards Disclosure of Genetic Test Results to Family Members: The Impact of Patients' Sociodemographic Background and Counseling Experience.Journal of genetic counseling · 2016Article
- "What the patient wants…": Lay attitudes towards end-of-life decisions in Germany and Israel.Medicine, health care, and philosophy · 2015Article
- Exploring the positions of German and Israeli patient organizations in the bioethical context of end-of-life policies.Health care analysis : HCA : journal of health philosophy and policy · 2014Article
- Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey.BMC medical ethics · 2014Article
- Genetic testing and counseling for hereditary neurological diseases in Mali.Journal of community genetics · 2011Article
- Commentary: a sociologist's view on community genetics.Journal of community genetics · 2010Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The professional and institutional responsibility for handling genetic knowledge is well discussed; less attention has been paid to how lay people and particularly people who are affected by genetic diseases perceive and frame such responsibilities. In this exploratory study we qualitatively examine the attitudes of lay people, patients and relatives of patients in Germany and Israel towards genetic testing. These attitudes are further examined in the national context of Germany and Israel, which represent opposite regulatory approaches and bioethical debates concerning genetic testing. Three major themes of responsibility emerged from the inter-group and cross-cultural comparison: self-responsibility, responsibility for kin, and responsibility of society towards its members. National contrast was apparent in the moral reasoning of lay respondents concerning, for example, the right not to know versus the duty to know (self-responsibility) and the moral conflict concerning informing kin versus the moral duty to inform (responsibility for kin). Attitudes of respondents affected by genetic diseases were, however, rather similar in both countries. We conclude by discussing how moral discourses of responsibility are embedded within cultural (national, religious) as well as phenomenological (being affected) narratives, and the role of public engagement in bioethical discourse.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.