ReviewInternational journal of health geographics2009
Musings on privacy issues in health research involving disaggregate geographic data about individuals.
Review in International journal of health geographics, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed.
- Radiologic exposomics: imaging the environmental imprint on cancer for precision oncology.La Radiologia medica · 2026Review
- Lifetime residential history collection and processing for environmental data linkages in the ABCD study.Health & place · 2024Article
- Article
- Reconciling public health common good and individual privacy: new methods and issues in geoprivacy.International journal of health geographics · 2022Article
- Geoprivacy in Neighbourhoods and Health Research: A Mini-Review of the Challenges and Best Practices in Epidemiological Studies.Public health reviews · 2022Review
- A distributed geospatial approach to describe community characteristics for multisite studies.Journal of clinical and translational science · 2021Article
- A Case for Participatory Disease Surveillance of the COVID-19 Pandemic in India.JMIR public health and surveillance · 2020Article
- Addressing the data guardian and geospatial scientist collaborator dilemma: how to share health records for spatial analysis while maintaining patient confidentiality.International journal of health geographics · 2019Article
- A Geoprivacy by Design Guideline for Research Campaigns That Use Participatory Sensing Data.Journal of empirical research on human research ethics : JERHRE · 2018Article
- Geospatial cryptography: enabling researchers to access private, spatially referenced, human subjects data for cancer control and prevention.Journal of geographical systems · 2017Article
- Confidentiality considerations for use of social-spatial data on the social determinants of health: Sexual and reproductive health case study.Social science & medicine (1982) · 2016Article
- Evolution of research in health geographics through the International Journal of Health Geographics (2002-2015).International journal of health geographics · 2016Article
- Anonymisation of geographical distance matrices via Lipschitz embedding.International journal of health geographics · 2016Article
- Spatial video geonarratives and health: case studies in post-disaster recovery, crime, mosquito control and tuberculosis in the homeless.International journal of health geographics · 2015Article
- Anonymisation of address coordinates for microlevel analyses of the built environment: a simulation study.BMJ open · 2015Article
- Ensuring Confidentiality of Geocoded Health Data: Assessing Geographic Masking Strategies for Individual-Level Data.Advances in medicine · 2014Review
- Spatially explicit data: stewardship and ethical challenges in science.PLoS biology · 2013Article
- Spatializing health research: what we know and where we are heading.Geospatial health · 2013Article
- Patterns of obesogenic neighborhood features and adolescent weight: a comparison of statistical approaches.American journal of preventive medicine · 2012Article
- Estimating proximity to care: are straight line and zipcode centroid distances acceptable proxy measures?Medical care · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This paper offers a state-of-the-art overview of the intertwined privacy, confidentiality, and security issues that are commonly encountered in health research involving disaggregate geographic data about individuals. Key definitions are provided, along with some examples of actual and potential security and confidentiality breaches and related incidents that captured mainstream media and public interest in recent months and years. The paper then goes on to present a brief survey of the research literature on location privacy/confidentiality concerns and on privacy-preserving solutions in conventional health research and beyond, touching on the emerging privacy issues associated with online consumer geoinformatics and location-based services. The 'missing ring' (in many treatments of the topic) of data security is also discussed. Personal information and privacy legislations in two countries, Canada and the UK, are covered, as well as some examples of recent research projects and events about the subject. Select highlights from a June 2009 URISA (Urban and Regional Information Systems Association) workshop entitled 'Protecting Privacy and Confidentiality of Geographic Data in Health Research' are then presented. The paper concludes by briefly charting the complexity of the domain and the many challenges associated with it, and proposing a novel, 'one stop shop' case-based reasoning framework to streamline the provision of clear and individualised guidance for the design and approval of new research projects (involving geographical identifiers about individuals), including crisp recommendations on which specific privacy-preserving solutions and approaches would be suitable in each case.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.