ArticlePsychiatry2009
An exploration of attitudes among black Americans towards psychiatric genetic research.
Article in Psychiatry, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 4 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- The role of race and ethnicity in views toward and participation in genetic studies and precision medicine research in the United States: A systematic review of qualitative and quantitative studies.Molecular genetics & genomic medicine · 2020Pooled it
- Racial and ethnic differences in knowledge and attitudes about genetic testing in the US: Systematic review.Journal of genetic counseling · 2019Pooled it
- A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.American journal of public health · 2014Pooled it
- A systematic review of strategies that increase the recruitment and retention of African American adults in genetic and genomic studies.The ABNF journal : official journal of the Association of Black Nursing Faculty in Higher Education, Inc · 2011Pooled it
- Fostering inclusive participation in non-invasive neurotechnology research: a community-based study with an underrepresented population.Frontiers in human neuroscience · 2026Article
- Winning hearts & minds: prostate cancer outreach and clinical trial enrollment in minority men.Translational cancer research · 2024Review
- "I Have Come Because I See You Care About Me": Recruiting Older Black Americans for Genomic Research.Ethnicity & disease · 2024Article
- Barriers, motivators and strategies to increase participation in genetic research among Asian and Black families of autistic individuals.Journal of community genetics · 2024Article
- Ethnoracialized group differences in attitudes and knowledge about schizophrenia and willingness to engage in biomarker research: The UBIGR Study.Psychiatry research · 2024Article
- Transgender identity genetic research: Attitudes, opinions & beliefs among members of the transgender and gender diverse communities.International journal of transgender health · 2024Article
- Relationship Between Psychological Symptoms and Self-Esteem Levels Before and After Stomach Botox Treatment.Medical science monitor : international medical journal of experimental and clinical research · 2023Article
- Study Navigation and Enrollment in a Community Sample: Does Generational Cohort Matter?Journal of intergenerational relationships · 2023Article
- Influences of race and clinical variables on psychiatric genetic research participation: Results from a schizophrenia sample.PloS one · 2023Article
- Beliefs and willingness towards participating in genetic testing for depression in low-income and racial/ethnic minority mothers at-risk.Archives of psychiatric nursing · 2022Article
- Eliciting Willingness and Beliefs towards Participation in Genetic Psychiatric Testing in Black/African American Mothers at Risk for Depression.Behavioral sciences (Basel, Switzerland) · 2020Article
- Feasibility of a mail-in, self-administered dried blood spot collection method in national, population-based alcohol surveys in the United States.Addiction (Abingdon, England) · 2019Article
- Using the diffusion of innovations model to guide participant engagement in the genomics era.Journal of genetic counseling · 2019Article
- Lung Cancer Screening and Epigenetics in African Americans: The Role of the Socioecological Framework.Frontiers in oncology · 2019Article
- Views of the importance of psychiatric genetic research by potential volunteers from stakeholder groups.Journal of psychiatric research · 2018Article
- Attitudes Toward Genomic Testing and Prostate Cancer Research Among Black Men.American journal of preventive medicine · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 2 countries.
Funding
Abstract
With increasing emphasis on understanding genetic contribution to disease, inclusion of all racial and ethnic groups in molecular genetic research is necessary to ensure parity in distribution of research benefits. Blacks are underrepresented in large-scale genetic studies of psychiatric disorders. In an effort to understand the reasons for the underrepresentation, this study explored black participants' attitudes towards genetic research of psychiatric disorders. Twenty-six adults, the majority of whom were black (n = 18) were recruited from a New York City community to participate in six 90-minute focus groups. This paper reports findings about respondents' understanding of genetics and genetic research, and opinions about psychiatric genetic research. Primary themes revealed participants' perceived lack of knowledge about genetics, concerns about potentially harmful study procedures, and confidentiality surrounding mental illness in families. Participation incentives included provision of treatment or related service, monetary compensation, and reporting of results to participants. These findings suggest that recruitment of subjects into genetic studies should directly address procedures, privacy, benefits and follow-up with results. Further, there is critical need to engage communities with education about genetics and mental illness, and provide opportunities for continued discussion about concerns related to genetic research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.