ArticleBMJ (Clinical research ed.)2009
Exploring preferences for place of death with terminally ill patients: qualitative study of experiences of general practitioners and community nurses in England.
Article in BMJ (Clinical research ed.), 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 3 of them syntheses that pooled it.
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Who cites it
39 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Preferred Place of Death in Adult Cancer Patients: A Systematic Review and Meta-Analysis.Frontiers in psychology · 2021Pooled it
- Do Patients Want to Die at Home? A Systematic Review of the UK Literature, Focused on Missing Preferences for Place of Death.PloS one · 2015Pooled it
- Barriers and facilitators for general practitioners to engage in advance care planning: a systematic review.Scandinavian journal of primary health care · 2013Pooled it
- [General practitioner consultation on advance directives - results of a survey of general practitioners in Lower Saxony].Deutsche medizinische Wochenschrift (1946) · 2026Article
- Article
- Home or hospital as the place of end-of-life care and death: A survey among Chinese residents of Macao.Frontiers in public health · 2023Article
- 'The beauty and the less beautiful': exploring the meanings of dying at 'home' among community and practitioner representatives and advocates across Canada.Palliative care and social practice · 2023Article
- The development and feasibility study of Multidisciplinary Timely Undertaken Advance Care Planning conversations at the outpatient clinic: the MUTUAL intervention.BMC palliative care · 2022Article
- The quality of end of life care for Danish cancer patients who have received specialized palliative: a national survey using the Danish version of VOICES-SF.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Preferred place of death and end-of-life care for adult cancer patients in Iran: A cross-sectional study.Frontiers in oncology · 2022Article
- Healthcare Providers' Perceptions on the Timing of Initial Advance Care Planning Discussions in Japan: a Mixed-Methods Study.Journal of general internal medicine · 2021Article
- Healthcare professionals' perspectives of patient and family preferences of patient place of death: a qualitative study.BMC palliative care · 2021Article
- Complexity of Nurse Practitioners' Role in Facilitating a Dignified Death for Long-Term Care Home Residents during the COVID-19 Pandemic.Journal of personalized medicine · 2021Article
- Barriers in implementing the dying patient law: the Israeli experience - a qualitative study.BMC medical ethics · 2020Article
- Article
- Perspectives of bereaved relatives of patients with haematological malignancies concerning preferred place of care and death: A qualitative study.Palliative medicine · 2019Article
- Individual, clinical and system factors associated with the place of death: A linked national database study.PloS one · 2019Article
- Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from.BMJ supportive & palliative care · 2018Article
- Adult mortality in sub-saharan Africa, Zambia: Where do adults die?SSM - population health · 2017Article
- Predictors of place of death in South West Scotland 2000-2010: Retrospective cohort study.Palliative medicine · 2016Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo explore the experiences and perceptions of general practitioners and community nurses in discussing preferences for place of death with terminally ill patients.
designQualitative study using semistructured interviews and thematic analysis.
participants17 general practitioners and 19 nurses (16 district nurses, three clinical nurse specialists).
setting15 general practices participating in the Gold Standards Framework for palliative care from three areas in central England with differing socio-geography. Practices were selected on the basis of size and level of adoption of the standards framework.
resultsAll interviewees bar one had experience of discussing preferred place of death with terminally ill patients. They reported that preferences for place of death frequently changed over time and were often ill defined or poorly formed in patients' minds. Preferences were often described as being co-created in discussion with the patient or, conversely, inferred by the health professional without direct questioning or receiving a definitive answer from the patient. This inherent uncertainty challenged the practicability, usefulness, and value of recording a definitive preference. The extent to which the assessment of enabling such preferences can be used as a proxy for the effectiveness of palliative care delivery is also limited by this uncertainty. Generally, interviewees did not find discussing preferred place of death an easy area of practice, unless the patient broached the subject or led the discussions.
conclusionsFurther research is needed to enable development of appropriate training and support for primary care professionals. Better understanding of the importance of place of death to patients and their carers is also needed.
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