ArticlePsychiatric genetics2009
Racial and ethnic differences in willingness to participate in psychiatric genetic research.
Article in Psychiatric genetics, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
23 citing papers in PubMed.
- Perceptions of and willingness to participate in genomics research among a U.S. sample.Frontiers in genetics · 2026Article
- Perceptions of research participation among underrepresented groups: Insights using freelisting methodology.PloS one · 2026Article
- Ethnoracialized group differences in attitudes and knowledge about schizophrenia and willingness to engage in biomarker research: The UBIGR Study.Psychiatry research · 2024Article
- Variations in racial and ethnic groups' trust in researchers associated with willingness to participate in research.Humanities & social sciences communications · 2023Article
- Creating accessible Spanish language materials for Clinical Sequencing Evidence-Generating Research consortium genomic projects: challenges and lessons learned.Personalized medicine · 2021Article
- 'Sick and tired': Patients reported reasons for not participating in clinical psychiatric research.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Attitudes on pharmacogenetic testing in psychiatric patients with treatment-resistant depression.Depression and anxiety · 2020Article
- Factors associated with willingness to provide biospecimens for genetics research among African American cancer survivors.Journal of community genetics · 2019Article
- Views of the importance of psychiatric genetic research by potential volunteers from stakeholder groups.Journal of psychiatric research · 2018Article
- The Influence of Race and Ethnicity on Becoming a Human Subject: Factors Associated with Participation in Research.Contemporary clinical trials communications · 2017Article
- Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications.The American journal on addictions · 2017Review
- Learning from Latino voices: Focus Groups' Insights on Participation in Genetic Research.The American journal on addictions · 2017Article
- Participation in Cancer Pharmacogenomic Studies: A Study of 8456 Patients Registered to Clinical Trials in the Cancer and Leukemia Group B (Alliance).Journal of the National Cancer Institute · 2015Observational
- Effectiveness of a community research registry to recruit minority and underserved adults for health research.Clinical and translational science · 2015Article
- Effect of OPRM1 and stressful life events on symptoms of major depression in African American adolescents.Journal of affective disorders · 2014Article
- Patient characteristics and participation in a genetic study: a type 2 diabetes cohort.Journal of investigative medicine : the official publication of the American Federation for Clinical Research · 2014Article
- Genotyping serotonin transporter polymorphisms 5-HTTLPR and rs25531 in European- and African-American subjects from the National Institute of Mental Health's Collaborative Center for Genomic Studies.Translational psychiatry · 2013Article
- Socioeconomic determinants associated with willingness to participate in medical research among a diverse population.Contemporary clinical trials · 2012Article
- Recruitment for genetic studies of epilepsy.Epilepsy research · 2012Article
- Diverse perceptions of the informed consent process: implications for the recruitment and participation of diverse communities in the National Children's Study.American journal of community psychology · 2012Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
objectiveThe National Institute of Mental Health's effort to rectify the underrepresentation of American Blacks in the genetic studies of psychiatric disorders has met with mixed success. This study was designed to understand some of the barriers to recruitment.
methodsMen and women, who were of Black, White or Hispanic race/ethnicity, aged 18-79 years (N= 353), were recruited from clinical and community settings in New York City. Participants responded to a survey that was designed to measure willingness to participate and attitudes toward genetic research. Principal components analyses generated eight factors including perceived benefits, concerns about, and drawbacks of genetic research, and beliefs about genetic or environmental contributions to psychopathology. Analysis of variance assessed within-ethnic group differences on factor scores, as they related to willingness to participate in genetic research.
resultsEthnic groups did not differ significantly in stated willingness to participate in genetic research; more than 70% in each group were willing to participate. Among Blacks and Hispanics, mistrust and wariness, and stigma were significantly increased in those unwilling to participate; for Whites, perceived benefit to society and perceived importance for knowledge/education were associated with willingness to participate. For Blacks and Hispanics, youth (aged 18-29 years) and college education reduced, but did not eliminate the association between wariness and mistrust and willingness to participate.
conclusionFindings suggest that recruitment efforts aimed at increasing the representation of Blacks should be aware of the barriers among those who are less educated, and involve interactive community collaborations, to fully address the mistrust in this population.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.