ArticleJournal of neuro-oncology2010
Information gaps for patients requiring craniotomy for benign brain lesion: a qualitative study.
Article in Journal of neuro-oncology, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 48 citations in OpenAlex.
- The Effects of Brain Tumours upon Medical Decision-Making Capacity.Current oncology reports · 2019Pooled it
- A scoping review: Understanding brain tumor patients' decisional needs and preferences.Neuro-oncology practice · 2025Review
- Article
- A single-center prospective study regarding time to return to activities of daily living after craniotomy for brain tumors.Acta neurochirurgica · 2023Article
- Surgical Informed Consent: A Scoping Review of Physician-facing Decision Support Tools.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2023Article
- Preventing Medicolegal Problems in Neurosurgical Practice: Do's and Don'ts.Acta neurochirurgica. Supplement · 2023Review
- The Value and Potential of Qualitative Research Methods in Neurosurgery.World neurosurgery · 2022Article
- Shared decision-making in neurosurgery: a scoping review.Acta neurochirurgica · 2021Article
- Determining the unmet needs of patients with intracranial meningioma-a qualitative assessment.Neuro-oncology practice · 2020Article
- Legal challenges in neurological practice.Annals of Indian Academy of Neurology · 2016Review
- Systematic review of interventions to improve the provision of information for adults with primary brain tumors and their caregivers.Frontiers in oncology · 2015Review
- A nine-year review of medicolegal claims in neurosurgery.Annals of the Royal College of Surgeons of England · 2014Article
- Together and apart: providing psychosocial support for patients and families living with brain tumors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2014Article
- Care and support needs of patients and carers early post-discharge following treatment for non-malignant brain tumour: establishing a new reality.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2012Article
- A qualitative assessment of the supportive care and resource needs of patients undergoing craniotomy for benign brain tumours.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2011Article
- Patient and caregiver perceptions of communication of prognosis in high grade glioma.Journal of neuro-oncology · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
Doctor-patient communication in the setting of a life-threatening illness poses considerable challenges. This study aimed to determine the information needs of a subset of neurosurgical patients. Qualitative case study methodology was used. Twenty-five semi-structured interviews were conducted with ambulatory adult patients who had undergone surgery for a benign brain tumor, arteriovenous malformation, or unruptured aneurysm. Interviews were digitally audio recorded and transcribed, and the data subjected to thematic analysis. Six overarching themes emerged from the data: (1) the amount of information patients want varies; (2) the type of information needed is not limited to information about treatment options and risks; (3) patients engage in independent information seeking for a variety of reasons; (4) patients consider compassion from their surgeon as important; (5) direct communication with the surgeon post-operatively is very important; and (6) patients' information needs are greatest post-operatively. Many patients felt that the amount and quality of information they received was not sufficient, particularly regarding post-operative recovery and long-term life issues, leading many to do their own research. The findings from this study emphasize the need for improved communication with patients so they can participate meaningfully in choices about their treatment, give a truly informed consent, and effectively participate in their own recovery.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.