ArticleFamilial cancer2010
Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors.
Article in Familial cancer, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review.Journal of medical Internet research · 2015Pooled it
- Measuring high-risk parents' opinions about direct-to-consumer genetic testing for adult-onset inherited cancer syndromes in their adolescent and young adult children.Journal of genetic counseling · 2023Article
- Actionability of commercial laboratory sequencing panels for newborn screening and the importance of transparency for parental decision-making.Genome medicine · 2021Article
- Adolescents' and Parents' Genomic Testing Decisions: Associations With Age, Race, and Sex.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2020Article
- Decisional conflict among adolescents and parents making decisions about genomic sequencing results.Clinical genetics · 2020Article
- Genetic Test Reporting and Counseling for Melanoma Risk in Minors May Improve Sun Protection Without Inducing Distress.Journal of genetic counseling · 2018Article
- Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.The Hastings Center report · 2018Article
- Paternity testing under the cloak of recreational genetics.European journal of human genetics : EJHG · 2017Article
- How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
- Communication is the key. : Part 2 : Direct to consumer genetics in our future daily life ?Journal of cell communication and signaling · 2014Article
- Experience, knowledge, and opinions about childhood genetic testing in Batten disease.Molecular genetics and metabolism · 2014Article
- Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policy. European Society of Human Genetics and European Society of Human Reproduction and Embryology.European journal of human genetics : EJHG · 2013Article
- Personalizing health care: feasibility and future implications.BMC medicine · 2013Review
- Interest, rationale, and potential clinical applications of genetic testing for mood disorders: a survey of stakeholders.Journal of affective disorders · 2013Article
- Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice.Annual review of genomics and human genetics · 2013Review
- An exploration of genetic health professionals' experience with direct-to-consumer genetic testing in their clinical practice.European journal of human genetics : EJHG · 2012Article
- Legislation on direct-to-consumer genetic testing in seven European countries.European journal of human genetics : EJHG · 2012Article
- Is there a doctor in the house? : The presence of physicians in the direct-to-consumer genetic testing context.Journal of community genetics · 2012Article
- Health care providers and direct-to-consumer access and advertising of genetic testing in the United States.Genome medicine · 2011Article
- Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?European journal of human genetics : EJHG · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
More and more companies are advertising and selling genetic tests directly to consumers. Considering the ethical, legal, and psychological concerns surrounding genetic testing in minors, a study of companies' websites was performed in order to describe and analyze their policies with respect to this issue. Of the 29 companies analyzed, 13 did not provide any information about this matter, eight companies allowed genetic testing upon parental request, four companies stated that their website is not directed to children under 18 years, and four companies suggested that in order to be tested, applicants should have reached the age of legal majority. If private companies offer genetic tests which are also offered in a clinical setting, can they be expected to adhere to the existing clinical guidelines with regard to these tests? If so, a certain ambiguity exists. Many companies are emphasizing in their disclaimers that their services are not medical services and should not be used as a basis for making medical decisions. Nonetheless, it remains debatable whether genetic testing in minors would be appropriate in this context. In line with the Advisory Committee on Genetic Testing, the Human Genetics Commission addressed the problem of non-consensual testing and recommended not to supply genetic testing services directly to those under the age of 16 or to those not able to make a competent decision regarding testing.
Indexed as
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.