ArticleJournal of genetic counseling2009
Development of E-info gene(ca): a website providing computer-tailored information and question prompt prior to breast cancer genetic counseling.
Article in Journal of genetic counseling, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 26 citations in OpenAlex.
- Economic Evaluation Alongside a Clinical Trial of Telephone Versus In-Person Genetic Counseling for BRCA1/2 Mutations in Geographically Underserved Areas.Journal of oncology practice · 2016Trial
- Effects of a pre-visit educational website on information recall and needs fulfilment in breast cancer genetic counselling, a randomized controlled trial.Breast cancer research : BCR · 2012Trial
- A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling.Familial cancer · 2012Trial
- The Question-prompt list (QPL): Why it is needed in the Indian oncology setting?Cancer reports (Hoboken, N.J.) · 2021Review
- User engagement with web-based genomics education videos and implications for designing scalable patient education materials.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2019Article
- Engaging stakeholders in the co-development of programs or interventions using Intervention Mapping: A scoping review.PloS one · 2018Article
- PatientVOICE: Development of a Preparatory, Pre-Chemotherapy Online Communication Tool for Older Patients With Cancer.JMIR research protocols · 2017Article
- Increasing Fruit and Vegetable Consumption Through a Healthy Eating Blog: A Feasibility Study.JMIR research protocols · 2017Article
- Active Involvement of End Users When Developing Web-Based Mental Health Interventions.Frontiers in psychiatry · 2017Article
- Active patient participation in the development of an online intervention.JMIR research protocols · 2014Article
- eHealth program to empower patients in returning to normal activities and work after gynecological surgery: intervention mapping as a useful method for development.Journal of medical Internet research · 2012Article
- What information do cancer genetic counselees prioritize?Journal of genetic counseling · 2012Article
- Use and evaluation of an individually tailored website for counselees prior to breast cancer genetic counseling.Journal of cancer education : the official journal of the American Association for Cancer Education · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This article describes the stepwise development of the website 'E-info gene(ca)'. The website provides counselees in breast cancer genetic counseling with computer-tailored information and a question prompt prior to their first consultation. Counselees generally do not know what to expect from genetic counseling and they tend to have a passive role, receiving large amounts of relatively standard information. Using the "intervention mapping approach," we developed E-info gene(ca) aiming to enhance counselees' realistic expectations and participation during genetic counseling. The information on this website is tailored to counselees' individual situation (e.g., the counselee's age and cancer history). The website covers the topics of the genetic counseling process, breast cancer risk, meaning of being a carrier of a cancer gene mutation, emotional consequences and hereditary breast cancer. Finally, a question prompt encourages counselees to prepare questions for their genetic counseling visit.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.