Evidence map›Paper›PMID 19421895›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2009

Family caregiving and emotional strain: associations with quality of life in a large national sample of middle-aged and older adults.

David L Roth, Martinique Perkins, Virginia G Wadley, Ella M Temple, William E Haley

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 95 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
95citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

95 citing papers in PubMed, 5 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Pooled it
  5. Reviews: developing culturally sensitive dementia caregiver interventions: are we there yet?American journal of Alzheimer's disease and other dementias · 2010
    Pooled it
  6. Trial
  7. Caregivers' incongruence: emotional strain in caring for persons with stroke.Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses
    Trial
  8. Article
  9. Article
  10. Caregiving responsibilities, living alone, and mental health among older women during a time of collective stress.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026
    Article
  11. Article
  12. Article
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  17. The relationship of health activation with risk of future cardiovascular disease among rural family caregivers of patients with chronic illnesses.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2024
    Article
  18. Observational
  19. Subtypes of Transitions into a Family Caregiving Role: A Latent Class Analysis.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024
    Article
  20. Article

35 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

David L RothDepartment of Biostatistics, School of Public Health, University of Alabama at Birmingham, Birmingham, AL 35294-0022, USA, droth@uab.edu
Martinique Perkins
Virginia G Wadley
Ella M Temple
William E Haley

Funding

VCID and Stroke in a Bi-racial National CohortU01NS041588 · NINDS · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI CUSHMAN, MARY, HOWARD, GEORGE · 2002 to 2022
$96.0M
Caregiving and Health Care Utilization after Stroke among Medicare BeneficiariesR01NS075047 · NINDS · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI ROTH, DAVID L · 2011 to 2015
$2.0M
Psychosocial Impact of Stroke on Family CaregiversR01NS045789 · NINDS · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI ROTH, DAVID L · 2005 to 2009
$1.6M
NINDS NIH HHS R01 NS045789NINDS NIH HHS R01 NS075047NINDS NIH HHS U01 NS041588
6 · The paper itself

Abstract

purposeThis study examined the quality of life correlates of family caregiving and caregiving strain in a large national epidemiological sample.

methodsStructured telephone interviews were conducted with 43,099 participants as part of the REasons for Geographic and Racial Differences in Stroke (REGARDS) study. Participants completed the 12-item short form health survey (SF-12) and brief measures of depressive symptoms, social contacts, and caregiving strain.

resultsFamily caregiving responsibilities were reported by 12% of participants. Caregivers reported more quality of life problems than noncaregivers, but these effects were largely dependent on the perceived level of caregiving strain. High strain caregivers reported more problems with emotional distress, worse physical functioning, and fewer social contacts than noncaregivers. Conversely, caregivers who reported no strain from caregiving reported better quality of life than noncaregivers. Caregiving strain effects were not due to demographic differences or to more objective indicators of caregiving demand.

conclusionsPsychological and social indices of quality of life indicate prevalent problems among family caregivers who have experienced high strain from their caregiving responsibilities. Public health programs for disabled individuals should include assessments of strain on family caregivers and support services for those who report high levels of caregiving strain.

Indexed as

Quality of LifeAgedCaregiversFemaleHealth SurveysHumansInterviews as TopicMaleMiddle AgedStress, PsychologicalUnited States

Identifiers

PMID19421895
PMCPMC2855243

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.