ArticleHealth expectations : an international journal of public participation in health care and health policy2009
Health researchers' attitudes towards public involvement in health research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 115 papers, 6 of them syntheses that pooled it.
What it found
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Who cites it
115 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Facilitators of and barriers to patient and public involvement in mental health research within university settings: a systematic review and meta-synthesis.Psychological medicine · 2025Pooled it
- International palliative care research priorities: A systematic review.BMC palliative care · 2020Pooled it
- End-Users and Caregivers' Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review.International journal of environmental research and public health · 2019Pooled it
- Black and minority ethnic group involvement in health and social care research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Patient and service user engagement in research: a systematic review and synthesized framework.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- Patient engagement in research: a systematic review.BMC health services research · 2014Pooled it
- Involving older people in co-designing an intervention to reverse frailty and build resilience.Family practice · 2022Trial
- Trial
- "If the funders said to me that I have to dress in orange, I would dress in orange": findings from qualitative interviews on researchers' experiences of public involvement.Research involvement and engagement · 2026Article
- Embedding Patient and Public Engagement in a Cancer Project: Protocol for a Qualitative Study.JMIR research protocols · 2026Article
- Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement.Research involvement and engagement · 2026Article
- Optimism, ambivalence, and opportunities: staff perspectives signaling a critical turn in patient-oriented research in forensic mental health care settings.Frontiers in psychiatry · 2026Article
- Patient and Public Involvement with Forced Migrants: An Empirical Exploration of Ethical Issues.Journal of bioethical inquiry · 2025Article
- Partners, coordinators and high-level leaders' perspectives on a consumer and community involvement program in Australia: a qualitative evaluation using template analysis.BMC health services research · 2025Article
- Can co-designed educational interventions help consumers think critically about asking ChatGPT health questions? Results from a randomised-controlled trial.NPJ digital medicine · 2025Article
- Strengthening health literacy research through consumer engagement: a qualitative analysis of building and maintaining partnership.Health promotion international · 2025Article
- The involvement of stakeholders in computational model development to support decision-making in public health: a scoping review.BMC public health · 2025Article
- Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru.Research involvement and engagement · 2025Article
- Health researchers' experience collaborating with patient partners: a qualitative study.Research involvement and engagement · 2025Article
- Meaningful public involvement: changing research institutions toward epistemic justice.Frontiers in public health · 2025Article
55 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo investigate health researchers' attitudes to involving the public in research.
backgroundPublic involvement in research is encouraged by the Department of Health in the UK. Despite this, the number of health researchers actively involving the public in research appears to be limited. There is little research specifically addressing the attitudes of health researchers towards involving the public: how they interpret the policy, what motivates and de-motivates them and what their experiences have been to date.
designA qualitative research design, using semi-structured telephone interviews. SETTING AND
participantsFifteen purposively sampled UK-based University health researchers were the participants. Interviews were conducted over the telephone.
findingsThe participants suggested varying constructions of public involvement in research. Arguments based on moral and political principles and consequentialist arguments for involving the public in research were offered and most participants highlighted the potential benefits of involving the public. However, feelings of apprehension expressed by some participants imply that a number of researchers may still be uncomfortable with involving the public, as it presents a different way of working.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.