ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2010
Development of indicators for patient-centred cancer care.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
41 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review.BMJ global health · 2020Pooled it
- Operationalizing patient-centered cancer care: A systematic review and synthesis of the qualitative literature on cancer patients' needs, values, and preferences.Psycho-oncology · 2020Pooled it
- Pooled it
- Systematic evaluation of the patient-reported outcome (PRO) content of clinical trial protocols.PloS one · 2014Pooled it
- An integrative model of patient-centeredness - a systematic review and concept analysis.PloS one · 2014Pooled it
- Methods for the guideline-based development of quality indicators--a systematic review.Implementation science : IS · 2012Pooled it
- Practical Approaches to Patient-Centered Care in Europe: Mixed Methods Study Developing a Conceptual Framework for Comprehensive Cancer Care Networks.JMIR cancer · 2025Article
- Developing a progress assessment model for age friendly primary health care initiatives.BMC primary care · 2025Article
- Care quality and satisfaction at the cancer hospital - a questionnaire study of older patients with cancer and their family members.BMC health services research · 2024Article
- Article
- [Patient-centeredness].Chirurgie (Heidelberg, Germany) · 2022Review
- Bibliometric analysis of cancer care operations management: current status, developments, and future directions.Health care management science · 2022Review
- What do patients expect? Assessing patient-centredness from the patients' perspective: an interview study.BMJ open · 2021Article
- Validating a generic cancer consumer quality index in eight European countries, patient reported experiences and the influence of cultural differences.BMC cancer · 2021Article
- Improving the quality of person-centred healthcare from the patient perspective: development of person-centred quality indicators.BMJ open · 2020Article
- Optimal Care Pathways for People with Lung Cancer- a Scoping Review of the Literature.International journal of integrated care · 2020Article
- Second opinions in medical oncology.BMC palliative care · 2020Article
- International consensus: ovarian tissue cryopreservation in young Turner syndrome patients: outcomes of an ethical Delphi study including 55 experts from 16 different countries.Human reproduction (Oxford, England) · 2020Article
- Exploratory Factor Analysis of a Patient-Centered Cancer Care Measure to Support Improved Assessment of Patients' Experiences.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2020Article
- Assessing the relevance and implementation of patient-centredness from the patients' perspective in Germany: results of a Delphi study.BMJ open · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAssessment of current practice with a valid set of indicators is the key to successfully improving the quality of patient-centred care. For improvement purposes, we developed indicators of patient-centred cancer care and tested them on a population of patients with non-small cell lung cancer (NSCLC).
methodsRecommendations for patient-centred care were extracted from clinical guidelines, and patients were interviewed to develop indicators for assessing the patient-centredness of cancer care. These indicators were tested with regard to psychometric characteristics (room for improvement, applicability, discriminating capacity and reliability) on 132 patients with NSCLC treated in six hospitals in the east Netherlands. Data were collected from patients by means of questionnaires.
resultsEight domains of patient-centred cancer care were extracted from 61 oncology guidelines and 37 patient interviews and were translated into 56 indicators. The practice test amongst patients with NSCLC showed the most room for improvement within the domains 'emotional and psychosocial support', 'physical support' and 'information supply'. Overall, 26 of the 56 indicators had good psychometric characteristics.
conclusionsDeveloping a valid set of patient-centred indicators is a first step towards improving the patient centredness of cancer care. Indicators can be based on recommendations from guidelines, but adding patient opinions leads to a more complete picture of patient centredness. The practice test on patients with NSCLC showed that the patient centredness of cancer care can be improved. Our set of indicators may also be useful for future quality assessments for other patients with cancers or chronic diseases.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.