ArticleHealthcare policy = Politiques de sante2008
How Consumerist Do People Want to Be? Preferred Role in Decision-Making of Individuals with HIV/AIDS.
Article in Healthcare policy = Politiques de sante, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed, 14 citations in OpenAlex.
- Applying the principles of adaptive leadership to person-centred care for people with complex care needs: Considerations for care providers, patients, caregivers and organizations.Health expectations : an international journal of public participation in health care and health policy · 2021Review
- The impact of stigma on medication adherence among HIV-positive adolescent and young adult females and the moderating effects of coping and satisfaction with health care.AIDS patient care and STDs · 2012Article
- Assessment of medical students' shared decision-making in standardized patient encounters.Journal of general internal medicine · 2011Article
- Is Canada ready for patient accessible electronic health records? A national scan.BMC medical informatics and decision making · 2008Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundNorth American bioethics emphasizes autonomy, but do care recipients want an autonomous role in treatment decision-making?
participantsWe surveyed people living with HIV/AIDS (PHAs) treated at 12 clinics affiliated with the HIV Ontario Observational Database (HOOD).
designThe clinics distributed 809 surveys. Demographic information was merged from the HOOD database. MEASUREMENTS: The survey included questions about preferred role, satisfaction with role, trust in physicians, and use and helpfulness of information sources.
resultsThe 431 responses (response rate 53.3%) reflected the group believed most consumerist (well-educated gay men). Most (87%) had high/moderate trust in physicians and were satisfied with their level of involvement in treatment decision-making. They sought information from many sources (mean 8.2), particularly health providers, but also the Internet (used by 42%, seen as somewhat helpful). Nonetheless, only one respondent (0.2%) was categorized as autonomous/consumerist; 20.9% were passive, while 78.9% wanted a shared role.
conclusionsConsumerist rhetoric, with its emphasis on patient autonomy, is oversimplified. Even in this knowledgeable population, respondents wanted to understand their disease and options, but not to take on the provider's role. To our respondents, the optimal doctor-patient relationship is best characterized by a shared, trusting relationship between informed patients and expert providers.
Identifiers
19305762PMC2645145W2166960821What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.