ArticleJournal of genetic counseling2009
Decision-making about inherited cancer risk: exploring dimensions of genetic responsibility.
Article in Journal of genetic counseling, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- The use of heuristics in genetic testing decision-making: A qualitative interview study.PloS one · 2021Trial
- The ticking time-bomb. Health literacy in the context of genetic risk prediction in familial breast-ovarian cancer; A qualitative study.Qualitative research in medicine & healthcare · 2021Article
- Attitudes toward population screening among people living with fragile X syndrome in the UK: 'I wouldn't wish him away, I'd just wish his fragile X syndrome away'.Journal of genetic counseling · 2021Article
- Choices, attitudes, and experiences of genetic screening in Latino/a and Ashkenazi Jewish individuals.Journal of community genetics · 2020Article
- How the "control-fate continuum" helps explain the genetic testing decision-making process: a grounded theory study.European journal of human genetics : EJHG · 2020Article
- Distinctive psychological and social experiences of women choosing prophylactic oophorectomy for cancer prevention.Health care for women international · 2018Article
- Cancer Counseling of Low-Income Limited English Proficient Latina Women Using Medical Interpreters: Implications for Shared Decision-Making.Journal of genetic counseling · 2018Article
- Heightened perception of breast cancer risk in young women at risk of familial breast cancer.Familial cancer · 2018Article
- Timing and context: important considerations in the return of genetic results to research participants.Journal of community genetics · 2016Article
- Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.Health communication · 2016Article
- Disclosing Genetic Information to Family Members About Inherited Cardiac Arrhythmias: An Obligation or a Choice?Journal of genetic counseling · 2015Article
- Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care.European journal of human genetics : EJHG · 2014Article
- Incorporating direct-to-consumer genomic information into patient care: attitudes and experiences of primary care physicians.Personalized medicine · 2012Article
- Preserving the self: the process of decision making about hereditary breast cancer and ovarian cancer risk reduction.Qualitative health research · 2011Article
- Comparing family members' motivations and attitudes towards genetic testing for hereditary breast and ovarian cancer: a qualitative analysis.European journal of human genetics : EJHG · 2010Article
- "The cancer bond": exploring the formation of cancer risk perception in families with Lynch syndrome.Journal of genetic counseling · 2010Article
- Researching Experiences of Cancer Risk Through Online Blogs: A Reflexive Account of Working Toward Ethical Practice.Journal of empirical research on human research ethics : JERHREArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Since genetic information has implications for family members, some choices about genetic risk may be influenced by perceptions of responsibility to relatives. Drawing upon 25 semi-structured interviews with test recipients in Canada, this study explored decisions about inherited breast-ovarian and colon cancer. Qualitative data analysis revealed the pervasive significance of genetic responsibility in test decisions. We highlight three dimensions of genetic responsibility: 1) to know about the self for self; 2) to know about the self for others; 3) to know about the self to oblige others to know. It is argued that these dimensions of genetic responsibility have implications for test decisions, family relationships and other family members' desire to know (or not know) and to act (or not act) with respect to their own genetic risk. In particular, genetic responsibility may play out as a framing of a relative's moral obligation to know their risk that could obviate any interest they might have in not knowing. We conclude that perceptions of responsibility to-and of-other family members be thoroughly explored in genetic counseling sessions.
Indexed as
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.