SynthesisAmerican journal of medical genetics. Part A2009
Interventions to improve patient education regarding multifactorial genetic conditions: a systematic review.
Synthesis in American journal of medical genetics. Part A, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- Systematic evidence review and meta-analysis of outcomes associated with cancer genetic counseling.Genetics in medicine : official journal of the American College of Medical Genetics · 2024Pooled it
- Effective teaching strategies and methods of delivery for patient education: a systematic review and practice guideline recommendations.Journal of cancer education : the official journal of the American Association for Cancer Education · 2011Guideline
- 'How Did That Make You Feel?' Latinas' Use of Genetic Counseling and Testing for Hereditary Cancer Risk After Watching a Culturally Targeted Video and Receiving Patient Navigation.Psycho-oncology · 2025Trial
- Evaluating genetic counseling session duration: A scoping review of patient care time, influencing factors, and impact on patient outcomes.Journal of genetic counseling · 2025Article
- Call to action for genetic counseling research in hereditary cancer: Considerations from the evidence-based guidelines development process.Journal of genetic counseling · 2025Article
- Exploring individuals' experiences with self-reported unmet need for genetic testing.European journal of human genetics : EJHG · 2025Article
- Knowledge and beliefs about epilepsy genetics among Hispanic and non-Hispanic patients.Epilepsia · 2023Article
- Genetic Evaluation for Hereditary Cancer Syndromes Among African Americans: A Critical Review.The oncologist · 2022Review
- A qualitative study of epilepsy self-management barriers and facilitators in Black children and caregivers in Arkansas.Epilepsy & behavior : E&B · 2022Article
- Genomic Health Literacy Interventions in Pediatrics: Scoping Review.Journal of medical Internet research · 2021Article
- Factors leading to neonatal mortality due to neonatal purpura fulminans through the lens of a child death review.BMJ case reports · 2021Article
- Article
- Parents' Understanding of Genetics and Heritability.Journal of genetic counseling · 2017Article
- Evaluation of a Web-based decision aid for people considering the APOE genetic test for Alzheimer risk.Genetics in medicine : official journal of the American College of Medical Genetics · 2017Article
- Development and Initial Assessment of a Patient Education Video about Pharmacogenetics.Journal of personalized medicine · 2017Article
- DECIDE: a Decision Support Tool to Facilitate Parents' Choices Regarding Genome-Wide Sequencing.Journal of genetic counseling · 2016Article
- How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age.Molecular genetics & genomic medicine · 2016Article
- Relationships Between Health Literacy and Genomics-Related Knowledge, Self-Efficacy, Perceived Importance, and Communication in a Medically Underserved Population.Journal of health communication · 2016Article
- Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.American journal of human genetics · 2014Article
- Providing patient education: impact on quantity and quality of family health history collection.Familial cancer · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
The careful education of patients with complex genetic disease is essential. However, healthcare providers often have limited time to spend providing thorough genetic education. Furthermore, the number of healthcare professionals possessing strong genetics training may be inadequate to meet increasing patient demands. Due to such constraints, several interventions have been investigated over the past decade to identify potential resources for the facilitation of this specific type of patient education. This systematic literature review of these interventions for patient education attempts to elucidate the answer to the question: is there sufficient evidence for best practice for delivering genetic information to patients with multifactorial conditions? The various interventions (CD-ROM, group counseling, video/decision aid, and miscellaneous) were analyzed in terms of quality criteria and achievement of specific outcomes and were rated according to the Stetler model for evidence-based practice. Seven main outcomes were evaluated: (1) objective and subjective knowledge assessment, (2) psychological measures (general anxiety, depression, stress, cancer worry), (3) satisfaction/effectiveness of intervention, (4) time spent in counseling (time spent on basic genetic information vs. specific concerns), (5) decision-making/intent to undergo genetic testing, (6) treatment choice and value of that choice, and, finally (7) risk perception. Overall, the computer interventions resulted in more significant findings that were beneficial than any other category followed by the video category, although the group and miscellaneous categories did not measure all of the outcomes reported by the other two categories. Nevertheless, while these groups had neutral or negative findings in some of the outcomes, the computer intervention group showed significant improvement in genetics knowledge, psychological measures, satisfaction/effectiveness, time spent with counselor, and decision/intent to undergo testing.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.