ArticleJournal of aging and health2009
Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care.
Article in Journal of aging and health, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 97 citations in OpenAlex.
- Factors associated with participation in advance care planning among people with different degrees of cognitive impairment: a systematic review.BMC palliative care · 2026Pooled it
- Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies.Palliative medicine · 2019Pooled it
- Advance Care Planning Intention and Associated Factors Among People With Dementia: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- Factors influencing readiness for advance care planning in dementia: a qualitative interview study.BMC palliative care · 2026Article
- Advance Care Planning in the Context of Dementia: Defining Concordance.The Gerontologist · 2024Review
- How do surrogates make treatment decisions for patients with dementia: An experimental survey study.Health economics · 2024Article
- Decision Making for Patients With Severe Dementia Versus Normal Cognition Near the End of Life.Innovation in aging · 2023Article
- Occurrence and Timing of Advance Care Planning in Persons With Dementia in General Practice: Analysis of Linked Electronic Health Records and Administrative Data.Frontiers in public health · 2022Article
- Does it Matter Who Decides? Outcomes of Surrogate Decision-Making for Community-Dwelling, Cognitively Impaired Older Adults Near the End of Life.Journal of pain and symptom management · 2021Observational
- Improving End-of-Life Care for People with Dementia in LTC Homes During the COVID-19 Pandemic and Beyond.Canadian geriatrics journal : CGJ · 2021Article
- Determining medical decision-making capacity in brain tumor patients: why and how?Neuro-oncology practice · 2020Review
- A narrative review of facilitating and inhibiting factors in advance care planning initiation in people with dementia.European geriatric medicine · 2020Review
- What are the mechanisms that support healthcare professionals to adopt assisted decision-making practice? A rapid realist review.BMC health services research · 2019Review
- Goals-of-Care Conversations for Older Adults With Serious Illness in the Emergency Department: Challenges and Opportunities.Annals of emergency medicine · 2019Article
- Advance care planning in dementia: recommendations for healthcare professionals.BMC palliative care · 2018Review
- End-of-life decision making by family caregivers of persons with advanced dementia: A literature review of decision aids.SAGE open medicine · 2018Review
- Dying well with reduced agency: a scoping review and thematic synthesis of the decision-making process in dementia, traumatic brain injury and frailty.BMC medical ethics · 2016Article
- Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals.BMC palliative care · 2015Article
- End-of-life care communications and shared decision-making in Norwegian nursing homes--experiences and perspectives of patients and relatives.BMC geriatrics · 2015Article
- Factors related to establishing a comfort care goal in nursing home patients with dementia: a cohort study among family and professional caregivers.Journal of palliative medicine · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveThis study examines how surrogate decision makers for dementia patients developed an understanding of patient preferences about end-of-life (EOL) care and patient wishes.
methodsSemistructured interviews were conducted with 34 surrogate decision makers for hospice-eligible nursing home patients with dementia. The data were content analyzed.
resultsMost surrogates reported that patients had previously completed an advance directive (59%), discussed preferences for EOL care (56%), or done both (38%). Catalysts for and barriers to completing an advance directive or having EOL care discussions included factors that were both intrinsic and extrinsic to the patient. The most commonly reported wish for EOL care was to not be kept alive by "machines" or "extraordinary measures." DISCUSSION: Health care providers may be able to assist patients and families by normalizing discussions of dying, encouraging advance care planning, helping them identify goals for EOL care, and providing information to support treatment decisions consistent with patients' wishes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.