ReviewEnvironmental health : a global access science source2009
Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants.
Review in Environmental health : a global access science source, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 72 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
72 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Recruiting underserved populations to dermatologic research: a systematic review.International journal of dermatology · 2011Pooled it
- Development of personal air pollution exposure report-back materials to Household Air Pollution Intervention Network (HAPIN) trial participants in Guatemala and Rwanda: a qualitative study.BMJ global health · 2025Trial
- Outcomes from Returning Individual versus Only Study-Wide Biomonitoring Results in an Environmental Exposure Study Using the Digital Exposure Report-Back Interface (DERBI).Environmental health perspectives · 2021Trial
- A personalized tutorial to improve understanding of individual chemical results and opportunities for reducing exposure.Journal of exposure science & environmental epidemiology · 2026Article
- REACHing for PFAS solutions: how two communities responded to drinking water contamination.Journal of environmental studies and sciences · 2025Article
- Not whether but how: the ethics and Language of reporting back individual results.Environmental health : a global access science source · 2025Article
- From Subjects to Partners: Rethinking Research Methodologies through Citizen ScienceLa Medicina del lavoro · 2025Article
- Participant Experiences with Human Biomonitoring in Communities Affected by Chronic PFAS Environmental Contamination in the Veneto Region (Italy).International journal of environmental research and public health · 2025Article
- Empowering Citizens Through the Development and Deployment of a Community-Based Environmental Health Reporting Tool.Environmental justice (Print) · 2025Article
- Community engagement in Indigenous food systems contamination studies: A systematic scoping review.PloS one · 2025Article
- A Personalized Intervention to Increase Environmental Health Literacy and Readiness to Change in a Northern Nevada Population: Effects of Environmental Chemical Exposure Report-Back.International journal of environmental research and public health · 2024Article
- Moving Forward with Reporting Back Individual Environmental Health Research Results.Environmental health perspectives · 2023Article
- Health and Psychological Concerns of Communities Affected by Per- and Poly-Fluoroalkyl Substances: The Case of Residents Living in the Orange Area of the Veneto Region.International journal of environmental research and public health · 2023Article
- Invited Perspective: Making the Implicit Explicit-Connecting Environmental Health Literacy and Exposure Report-Back.Environmental health perspectives · 2023Article
- Translating community-based participatory research into broadscale sociopolitical change: insights from a coalition of women firefighters, scientists, and environmental health advocates.Environmental health : a global access science source · 2023Article
- Drinking Water Disparities in North Carolina Communities Served by Private Wells.Environmental justice (Print) · 2023Article
- Article
- Engaging participants with research findings: A rights-informed approach.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Factors that Influence Environmental Health Literacy from Returning Polycyclic Aromatic Hydrocarbon Exposure Results.International public health journal · 2023Article
- Mi PROTECT: A personalized smartphone platform to report back results to participants of a maternal-child and environmental health research cohort program in Puerto Rico.PLOS digital health · 2023Article
12 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundExposure assessment has shifted from pollutant monitoring in air, soil, and water toward personal exposure measurements and biomonitoring. This trend along with the paucity of health effect data for many of the pollutants studied raise ethical and scientific challenges for reporting results to study participants.
methodsWe interviewed 26 individuals involved in biomonitoring studies, including academic scientists, scientists from environmental advocacy organizations, IRB officials, and study participants; observed meetings where stakeholders discussed these issues; and reviewed the relevant literature to assess emerging ethical, scientific, and policy debates about personal exposure assessment and biomonitoring, including public demand for information on the human health effects of chemical body burdens.
resultsWe identify three frameworks for report-back in personal exposure studies: clinical ethics; community-based participatory research; and citizen science 'data judo.' The first approach emphasizes reporting results only when the health significance of exposures is known, while the latter two represent new communication strategies where study participants play a role in interpreting, disseminating, and leveraging results to promote community health. We identify five critical areas to consider in planning future biomonitoring studies.
conclusionPublic deliberation about communication in personal exposure assessment research suggests that new forms of community-based research ethics and participatory scientific practice are emerging.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.