SynthesisHealth expectations : an international journal of public participation in health care and health policy2009
Getting ready for user involvement in a systematic review.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 40 citations in OpenAlex.
- Interventions for adults with a history of complex traumatic events: the INCiTE mixed-methods systematic review.Health technology assessment (Winchester, England) · 2020Pooled it
- A systematic review of qualitative studies of adults' experiences of being assessed for psychological therapies.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Principles and Strategies for Interest-Holder Engagement in Health Guideline Development.Journal of evaluation in clinical practice · 2026Article
- Dialogical meanderings - evaluation framework and learnings from stakeholder involvement in the co-design of a participatory systematic review.Research involvement and engagement · 2025Article
- Article
- Ethically Driven and Methodologically Tailored: Setting the Agenda for Systematic Reviews in Domestic Violence and Abuse.Journal of family violence · 2023Article
- Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations.Research involvement and engagement · 2023Article
- Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.Palliative medicine · 2019Review
- Co-producing a shared understanding and definition of empowerment with people with dementia.Research involvement and engagement · 2019Article
- User involvement in adolescents' mental healthcare: protocol for a systematic review.BMJ open · 2017Article
- Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- A systematic scoping review of the evidence for consumer involvement in organisations undertaking systematic reviews: focus on Cochrane.Research involvement and engagement · 2016Article
- Combining PPI with qualitative research to engage 'harder-to-reach' populations: service user groups as co-applicants on a platform study for a trial.Research involvement and engagement · 2016Article
- User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness and usability of a systematic review update.Systematic reviews · 2015Article
- Tackling the tensions in evaluating capacity strengthening for health research in low- and middle-income countries.Health policy and planning · 2015Article
- Systematically searching for and assessing the literature for self-management of chronic pain: a lay users' perspective.BMC geriatrics · 2014Review
- Developing written information on osteoarthritis for patients: facilitating user involvement by exposure to qualitative research.Health expectations : an international journal of public participation in health care and health policy · 2014Article
- The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model.Patient preference and adherence · 2014Review
- Consumer involvement in systematic reviews of comparative effectiveness research.Health expectations : an international journal of public participation in health care and health policy · 2013Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveThis paper aims to support the critical development of user involvement in systematic reviews by explaining some of the theoretical, ethical and practical issues entailed in 'getting ready' for user involvement.
backgroundRelatively few health or social care systematic reviews have actively involved service users. Evidence from other research contexts shows that user involvement can have benefits in terms of improved quality and outcomes, hence there is a need to test out different approaches in order to realize the benefits of user involvement and gain a greater understanding of any negative outcomes.
designSetting up a service-user reference group for a review of user involvement in nursing, midwifery and health visiting research involved conceptualizing user involvement, developing a representation framework, identifying and targeting service users and creating a sense of mutuality and reciprocity. SETTING AND
participantsRecruitment was undertaken across England by two researchers. Members from 24 national consumer organizations were selected to participate in the review. MAIN VARIABLES STUDIED: Learning was gained about finding ways of navigating consumer networks and organizations, how best to communicate our goals and intentions and how to manage selection and 'rejection' in circumstances where we had stimulated enthusiasm. RESULTS AND
conclusionsInvolving service users helped us to access information, locate the findings in issues that are important to service users and to disseminate findings. User involvement is about relationships in social contexts: decisions made at the early conceptual level of research design affect service users and researchers in complex and personal ways.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.