ArticleAmerican journal of medical genetics. Part A2009
Family risk and related education and counseling needs: perceptions of adults with bipolar disorder and siblings of adults with bipolar disorder.
Article in American journal of medical genetics. Part A, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 34 citations in OpenAlex.
- The Efficacy of Genetic Counseling for Psychiatric Disorders: a Meta-Analysis.Journal of genetic counseling · 2017Pooled it
- A cluster randomized controlled trial of an online psychoeducational intervention for people with a family history of depression.BMC psychiatry · 2019Trial
- Cluster randomized controlled trial of a psycho-educational intervention for people with a family history of depression for use in general practice.BMC psychiatry · 2013Trial
- Living in a genetic penumbra: navigating uncertainty and morality.Journal of community genetics · 2026Article
- "If He Has it, We Know What to Do": Parent Perspectives on Familial Risk for Autism Spectrum Disorder.Journal of pediatric psychology · 2020Article
- Exposure to maternal depressive symptoms in childhood and suicide-related thoughts and attempts in Canadian youth: test of effect-modifying factors.Social psychiatry and psychiatric epidemiology · 2019Article
- A Psycho-Educational Intervention for People with a Family History of Depression: Pilot Results.Journal of genetic counseling · 2017Article
- How do Physicians Decide to Refer Their Patients for Psychiatric Genetic Counseling? A Qualitative Study of Physicians' Practice.Journal of genetic counseling · 2016Article
- Hopes and Expectations Regarding Genetic Testing for Schizophrenia Among Young Adults at Clinical High-Risk for Psychosis.Journal of psychiatric practice · 2016Article
- Obsessive-Compulsive Disorder: The Process of Parental Adaptation and Implications for Genetic Counseling.Journal of genetic counseling · 2016Article
- Ethical issues associated with genetic counseling in the context of adolescent psychiatry.Applied & translational genomics · 2015Review
- An assessment of genetic counseling services for individuals with multiple sclerosis.Journal of genetic counseling · 2015Article
- An approach to pediatric exome and genome sequencing.Current opinion in pediatrics · 2014Review
- Parenting with bipolar disorder: coping with risk of mood disorders to children.Social science & medicine (1982) · 2014Article
- Evaluating genetic counseling for individuals with schizophrenia in the molecular age.Schizophrenia bulletin · 2014Article
- Evaluating genetic counseling for family members of individuals with schizophrenia in the molecular age.Schizophrenia bulletin · 2014Article
- Individualizing recurrence risks for severe mental illness: epidemiologic and molecular genetic approaches.Schizophrenia bulletin · 2014Article
- Adaptation to bipolar disorder and perceived risk to children: a survey of parents with bipolar disorder.BMC psychiatry · 2013Article
- Genomic sequencing for psychiatric disorders: promise and challenge.The international journal of neuropsychopharmacology · 2013Article
- Knowledge and attitudes about personalized mental health genomics: narratives from individuals coping with serious mental illness.Community mental health journal · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
Genetics and mental health professionals increasingly provide education and counseling related to risk for psychiatric illness, but there is insufficient evidence about patient perceptions and needs to guide such interventions. Affected individuals and relatives may perceive increased family risk and have interest in genetic education and counseling. Our objectives were to explore perceptions of family vulnerability, perceived control, and coping strategies related to familial risk and needs from genetic counseling. Our methods included conducting semi-structured interviews (n = 48) with individuals with bipolar disorder (BPD) and unaffected siblings. Content analysis generated descriptive data that provide guidance for clinical interventions and themes to evaluate in future studies. The results showed that participants perceived increased personal and family risk, attributing BPD to genes and family environment. Causal attributions were often uncertain and at times inconsistent. Participants wished to modify psychiatric risk to relatives, but were uncertain how to do so; despite the uncertainty, most parents reported risk-modification efforts. Efforts to cope with family vulnerability included monitoring and cognitive distancing. Participants endorsed the usefulness of education and psychological support, but described more ambivalence about receiving risk assessment. Educational and supportive interventions around family risk for BPD should focus on perceptions of cause and vulnerability, reproductive decision-making, and early intervention and risk modification in young relatives. Psychological support is an important component. Providers should evaluate patient coping strategies, which could facilitate or hinder genetic counseling interventions, and should not assume interest in quantitative risk assessment.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.