ArticleBMJ (Clinical research ed.)2009
Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: prospective longitudinal qualitative study.
Article in BMJ (Clinical research ed.), 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 8 of them syntheses that pooled it.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
52 citing papers in PubMed, 8 syntheses or guidelines pooled it, 156 citations in OpenAlex.
- A Systematic Review of the Facilitators and Challenges as Perceived by Dental Service Providers in the Provision of Oral Healthcare for Culturally and Linguistically Diverse Populations.Community dentistry and oral epidemiology · 2026Pooled it
- Muslim communities' perspectives and preferences regarding end-of-life symptom management: a systematic review and narrative synthesis.BMJ open · 2026Pooled it
- South Asian Experiences of Palliative and End-of-Life Care Provision in the UK: A Systematic Literature Review and Thematic Synthesis.Journal of palliative care · 2026Pooled it
- Muslims and End-of-Life Healthcare in Non-Muslim Majority Nations: A Systematic Literature Review.Journal of pain and symptom management · 2024Pooled it
- Hospice care access inequalities: a systematic review and narrative synthesis.BMJ supportive & palliative care · 2022Pooled it
- Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review.Journal of immigrant and minority health · 2022Pooled it
- Islamophobia, Health, and Public Health: A Systematic Literature Review.American journal of public health · 2018Pooled it
- Challenges in the provision of healthcare services for migrants: a systematic review through providers' lens.BMC health services research · 2015Pooled it
- Trial
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- Mapping potential cultural and religious tensions in end-of-life care for Muslim patients: A scoping review.Palliative medicine · 2026Article
- Healthcare professionals' experiences of delivering palliative and end-of-life care in ethnically diverse communities: a qualitative study.BMC palliative care · 2026Article
- Discrimination in medical settings as perceived by forcibly displaced people within low- and middle-income countries: a scoping literature review.Public health reviews · 2026Review
- Managing cultural diversity in end-of-life care: a qualitative study.BMC palliative care · 2025Article
- Article
- Racism against racialized migrants in healthcare in Europe: a scoping review.International journal for equity in health · 2023Article
- Experiences of pain and pain management in advanced disease and serious illness for people from South Asian communities in Leeds and Bradford: a qualitative interview study.BMC palliative care · 2023Article
- The Experience of Informal Newcomer Cancer Caregivers with Limited Language Proficiency: A Scoping Review.Journal of immigrant and minority health · 2023Article
- Muslim patients in the U.S. confronting challenges regarding end-of-life and palliative care: the experiences and roles of hospital chaplains.BMC palliative care · 2023Article
- Article
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Authors and funding
11 authors at 3 institutions in 2 countries.
Funding
Abstract
objectivesTo examine the care experiences of South Asian Sikh and Muslim patients in Scotland with life limiting illness and their families and to understand the reasons for any difficulties with access to services and how these might be overcome.
designProspective, longitudinal, qualitative design using in-depth interviews.
settingCentral Scotland.
participants25 purposively selected South Asian Sikh and Muslim patients, 18 family carers, and 20 key health professionals.
results92 interviews took place. Most services struggled to deliver responsive, culturally appropriate care. Barriers to accessing effective end of life care included resource constrained services; institutional and, occasionally, personal racial and religious discrimination; limited awareness and understanding among South Asian people of the role of hospices; and difficulty discussing death. The most vulnerable patients, including recent migrants and those with poor English language skills, with no family advocate, and dying of non-malignant diseases were at particularly high risk of inadequate care.
conclusionsDespite a robust Scottish diversity policy, services for South Asian Sikh and Muslim patients with life limiting illness were wanting in many key areas. Active case management of the most vulnerable patients and carers, and "real time" support, from where professionals can obtain advice specific to an individual patient and family, are the approaches most likely to instigate noticeable improvements in access to high quality end of life care. Improving access to palliative care for all, particularly those with non-malignant illnesses, as well as focusing on the specific needs of ethnic minority groups, is required.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.