ArticleJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2007
Patients' Experiences of Being a Burden on Family in Terminal Illness.
Article in Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Self-management of patients with advanced cancer: A systematic review of experiences and attitudes.Palliative medicine · 2020Pooled it
- The experiences of adult heart, lung, and heart-lung transplantation recipients: A systematic review of qualitative research evidence.PloS one · 2020Pooled it
- Effects of a transitional palliative care model on patients with end-stage heart failure: a randomised controlled trial.Heart (British Cardiac Society) · 2016Trial
- Culture sensitive care in oncology care settings in Jordan: a qualitative study.Frontiers in public health · 2026Article
- Assisted Suicide in Austria: Nurses' Understanding of Patients' Requests and the Role of Patient Symptoms.International journal of environmental research and public health · 2025Article
- Mitigating End-of-Life Burden: Parallel Perspectives of Physician-Patients & Family Caregivers.Journal of pain and symptom management · 2022Article
- Financial difficulties and patient-reported outcomes among patients with advanced heart failure.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Experiences of End-of-Life Care of Older Adults with Cancer From the Perspective of Stakeholdersin Iran: A Content Analysis Study.Asian Pacific journal of cancer prevention : APJCP · 2021Article
- US Hospice Structure and its Implications for the "Right to Die" Debate : An Interdisciplinary Study of the "Feeling of Being a Burden to Others".Journal of bioethical inquiry · 2019Article
- Hospitalized patients with heart failure: the impact of anxiety, fatigue, and therapy adherence on quality of life.Archives of medical sciences. Atherosclerotic diseases · 2019Article
- Live and let die: existential decision processes in a fatal disease.Journal of neurology · 2014Article
- Is the Evaluation of Quality of Life in NSCLC Trials Important? Are the Results to be Trusted?Frontiers in oncology · 2014Review
- Are the data on quality of life and patient reported outcomes from clinical trials of metastatic non-small-cell lung cancer important?World journal of clinical oncology · 2013Article
- What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives.Patient preference and adherence · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Studies of persons with chronic and life-threatening illness have revealed a fear of being a burden on family. The purpose of this case study was to explore that concern in-depth in three persons with different terminal illnesses. Participants were part of a larger study of end-of-life decision making and were selected for this study because their illnesses are characterized by a steady decline in health (amyotrophic lateral sclerosis), a rapid decline (stage IV lung cancer), or an uncertain trajectory of decline (advanced heart failure). Content analysis of their interviews resulted in four themes: managing the burden, spirituality, supportive relationships, and planning for the future. Themes contained specific categories of thoughts, feelings, and actions related to fear of being a burden. These themes should be explored in greater depth in future larger studies of persons with terminal illness.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.