ArticleAmerican journal of medical genetics. Part C, Seminars in medical genetics2009
Making sense of genetic uncertainty: the role of religion and spirituality.
Article in American journal of medical genetics. Part C, Seminars in medical genetics, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 34 citations in OpenAlex.
- The use of religion, prayer, and faith to cope with the receipt of Alzheimer's disease risk information in a research context: A qualitative study of Latinos in NYC.SSM. Qualitative research in health · 2026Article
- Experiences and insights of thalassaemia carriers from an indigenous community in Sabah, Malaysia.Journal of community genetics · 2025Article
- Genetic testing and Guangdong college students in China: A cross-sectional study of knowledge and attitudes.Preventive medicine reports · 2025Article
- Genetic testing perspectives in Pakistani population: a survey on knowledge, attitudes, awareness, and concerns.Journal of community genetics · 2024Article
- Genetic counselors' response types to prenatal patient deferring or attributing religious/spiritual statements: An exploratory study of US genetic counselors.Journal of genetic counseling · 2023Article
- Decision-making for Risk-reducing Salpingo-oophorectomy (RRSO) in Southeast Asian BRCA Mutation Carriers With Breast Cancer: A Qualitative Study.International journal of behavioral medicine · 2022Article
- Considering religion and spirituality in precision medicine.Translational behavioral medicine · 2020Review
- "Be Prepared if I Bring It Up:" Patients' Perceptions of the Utility of Religious and Spiritual Discussion During Genetic Counseling.Journal of genetic counseling · 2016Article
- Spiritual Exploration in the Prenatal Genetic Counseling Session.Journal of genetic counseling · 2016Article
- Prenatal screening for congenital anomalies: exploring midwives' perceptions of counseling clients with religious backgrounds.BMC pregnancy and childbirth · 2014Article
- "I didn't know it existed before you called": protestant clergy experience, education and perceptions regarding genetics.Journal of genetic counseling · 2013Article
- Noninvasive prenatal diagnosis: pregnant women's interest and expected uptake.Prenatal diagnosis · 2011Article
- Exploring the role of religiosity and spirituality in amniocentesis decision-making among Latinas.Journal of genetic counseling · 2011Article
- Shortened time interval between colorectal cancer diagnosis and risk testing for hereditary colorectal cancer is not related to higher psychological distress.Familial cancer · 2011Article
Corrections and comments
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Authors and funding
1 author at 1 institution in 1 country.
Funding
Abstract
This article argues that to the extent that religious and spiritual beliefs can help people cope with genetic uncertainty, a limited spiritual assessment may be appropriate in genetic counseling. The article opens by establishing why genetic information is inherently uncertain and why this uncertainty can be medically, morally, and spiritually problematic. This is followed by a review of the range of factors that can contribute to risk assessments, including a few heuristics commonly used in responses to uncertainty. The next two sections summarize recent research on the diverse roles of religious and spiritual beliefs in genetic decisions and challenges to conducting spiritual assessments in genetic counseling. Based on these findings, religious and spiritual beliefs are posited as serving essentially as a heuristic that some people will utilize in responding to their genetic risks. In the interests of helping such clients make informed decisions, a limited spiritual assessment is recommended and described. Some of the challenges and risks associated with this limited assessment are discussed. Since some religious and spiritual beliefs can conflict with the values of medicine, some decisions will remain problematic.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.