Sharing study results with trial participants: time for action.

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it.

1. Placebo Rates in Crohn's Disease Randomized Clinical Trials: An Individual Patient Data Meta-Analysis.Gastroenterology · 2025
   Pooled it
2. Effect of Unblinding on Participants' Perceptions of Risk and Confidence in a Large Double-Blind Clinical Trial of Chemotherapy for Breast Cancer.JAMA oncology · 2015
   Trial
3. Participants' uptake of clinical trial results: a randomised experiment.British journal of cancer · 2010
   Trial
4. The SHOW RESPECT adaptable framework of considerations for planning how to share trial results with participants, based on qualitative findings from trial participants and site staff.Trials · 2024
   Article
5. COVID-19 and unintended steps towards further equity in global health research.BMJ global health · 2023
   Article
6. Engaging study participants in interpreting results: lessons from the TRIO study in Kenya and South Africa.International journal of women's health · 2019
   Article
7. Sharing Results with Clinical Trial Participants: Insights from an Online Survey of Chinese Consumers.Chinese medical journal · 2016
   Article
8. Research participant-centered outcomes at NIH-supported clinical research centers.Clinical and translational science · 2014
   Article
9. Subjects no more: what happens when trial participants realize they hold the power?BMJ (Clinical research ed.) · 2014
   Review
10. Assessing research participants' perceptions of their clinical research experiences.Clinical and translational science · 2011
    Article
11. Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2011
    Article
12. Returning individual research results: development of a cancer genetics education and risk communication protocol.Journal of empirical research on human research ethics : JERHRE · 2010
    Article

Corrections and comments

• Comment on
  Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.2009

Authors and funding

2 authors.

Funding

No grant is acknowledged in the PubMed record.

Abstract

PubMed holds no abstract for this paper.

Indexed as