ArticleGenetics in medicine : official journal of the American College of Medical Genetics2008
Patient interest in recording family histories of cancer via the Internet.
Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Family history tools for primary care: A systematic review.The European journal of general practice · 2022Pooled it
- The KinFact intervention - a randomized controlled trial to increase family communication about cancer history.Journal of women's health (2002) · 2014Trial
- Comparing electronic health record portals to obtain patient-entered family health history in primary care.Journal of general internal medicine · 2013Trial
- Effect of preventive messages tailored to family history on health behaviors: the Family Healthware Impact Trial.Annals of family medicineTrial
- Profiling Fast Healthcare Interoperability Resources (FHIR) of Family Health History based on the Clinical Element Models.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2016Article
- An internal performance assessment of CancerGene Connect: an electronic tool to streamline, measure and improve the genetic counseling process.Journal of genetic counseling · 2014Article
- Veterans' experience in using the online Surgeon General's family health history tool.Personalized medicine · 2011Article
- Educational needs about cancer family history and genetic counseling for cancer risk among frontline healthcare clinicians in New York City.Genetics in medicine : official journal of the American College of Medical Genetics · 2011Article
- Barriers in identification and referral to genetic counseling for familial cancer risk: the perspective of genetic service providers.Journal of genetic counseling · 2011Article
- Development and early usage patterns of a consumer-facing family health history tool.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2011Article
- Use of health information technology among racial and ethnic underserved communities.Perspectives in health information managemen · 2011Article
- Population-based family history-specific risks for colorectal cancer: a constellation approach.Gastroenterology · 2010Article
- Personal health records: a scoping review.Journal of the American Medical Informatics Association : JAMIAArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
purposeThis study investigated the interest of mammogram patients in using electronic tools for recording their family histories of cancer (FHC).
methodsSemistructured interviews were conducted with 65 patients visiting a breast center at a referral hospital in Cleveland, Ohio.
resultsMost (n = 40; 62%) respondents expressed interest in using an electronic tool for recording FHC and associated its use with a range of benefits to themselves, their families, and their health care providers. Women who were not interested (n = 25; 38%) in using an electronic tool for recording FHC were concerned about privacy issues, computer proficiency, and giving up the opportunity to provide family history information directly to the health care provider. Interest in using an electronic tool for recording FHC was not significantly associated with age, race, level of education or income, personal or FHC, or Internet access and frequency of use.
conclusionElectronic documentation of FHC was seen as largely desirable. However, clinical services to facilitate systematic family history documentation are likely to require more than one avenue for collecting and communicating this information, as not everyone who wants to provide a FHC to a health care provider is comfortable using the Internet to do so.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.