ArticleHealth expectations : an international journal of public participation in health care and health policy2008
Views of treatment decision making from adolescents with chronic illnesses and their parents: a pilot study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed.
- Shared decision-making aid for juvenile idiopathic arthritis: moving from informative patient education to interactive critical thinking.Clinical rheumatology · 2019Trial
- Child and parent perspectives in IBD management: a literature review and qualitative study.Crohn's & colitis 360 · 2026Article
- Barriers and Facilitators to Youth Decision-Making Involvement in Families Referred for Stem Cell Transplant.Journal of family nursing · 2024Article
- Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer.Palliative & supportive care · 2024Article
- Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents.JAMA network open · 2023Article
- How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods.International journal for equity in health · 2023Article
- "I have a Ph.D. in my daughter": Mother and Child Experiences of Living with Childhood Chronic Illness.Journal of child and family studies · 2022Article
- Advanced Obesity Treatment Selection among Adolescents in a Pediatric Weight Management Program.Childhood obesity (Print) · 2022Observational
- Exploration of Decisional Control Preferences in Adolescents and Young Adults with Cancer and Other Complex Medical Conditions.Journal of adolescent and young adult oncology · 2020Article
- Treatment Decision-Making Involvement in Adolescents and Young Adults With Cancer.Oncology nursing forum · 2019Review
- The Role of Shared Decision-Making in Shaping Intent to Access Services for Adolescents in Protective Custody.Child care in practice : Northern Ireland journal of multi-disciplinary child care practice · 2019Article
- Involving Youth With a Chronic Illness in Decision-making: Highlighting the Role of Providers.Pediatrics · 2018Article
- Supporting Family Decision-making for a Child Who Is Seriously Ill: Creating Synchrony and Connection.Pediatrics · 2018Article
- Difficult conversations: Discussing prognosis with children with cystic fibrosis.Pediatric pulmonology · 2018Article
- The Role of Medication in Supporting Emotional Wellbeing in Young People with Long-Term Needs.Healthcare (Basel, Switzerland) · 2017Article
- What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study.Pediatric rheumatology online journal · 2017Article
- Family Engagement in Pediatric Sickle Cell Disease Visits.Health communication · 2017Article
- Making decisions about chronic disease treatment: a comparison of parents and their adolescent children.Health expectations : an international journal of public participation in health care and health policy · 2016Article
- Physicians' Perceptions of Shared Decision Making in Chronic Disease and Its Barriers and Facilitators.The Journal of pediatrics · 2016Article
- '[I would like] a place to be alone, other than the toilet'--Children's perspectives on paediatric hospital care in the Netherlands.Health expectations : an international journal of public participation in health care and health policy · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveShared decision making may increase satisfaction with health care and improve outcomes, but little is known about adolescents' decision-making preferences. The primary purpose of this study is to describe the decision-making preferences of adolescents with chronic illnesses and their parents, and the extent to which they agree.
designSurvey. SETTING AND
participantsParticipants were 82 adolescents seen at one of four paediatric chronic illness subspecialty clinics and 62 of their parents. MAIN VARIABLES: Predictor variables include sociodemographics, health parameters, risk behaviour, and physical and cognitive development. The main outcome variable is preferences for decision-making style. RESULTS AND
conclusionsWhen collapsed into three response categories, nearly equal percentages of adolescents (37%) and parents (36%) preferred shared decision making. Overall, the largest proportion of adolescents (46%) and parents (53%) preferred passive decision making compared to active or shared decision making. Across five response choices, 33% of pairs agreed. Agreement was slight and not significant. Improved general health perceptions (OR=0.76, 95% CI=0.59-0.99) and improved behaviour (OR=0.75, 95% CI=0.56-0.99) were significantly associated with parents' preferences for less active decision making. Older age was significantly associated with agreement (OR 1.58, 95% CI=1.09-2.30) between parents and adolescents. The paucity of significant predictor variables may indicate physicians need to inquire directly about patient and parent preferences.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.