Evidence map›Paper›PMID 19074299›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA

Evaluating predictors of geographic area population size cut-offs to manage re-identification risk.

Khaled El Emam, Ann Brown, Philip AbdelMalik

Abstract readValidation Study
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Article
  2. Article
  3. Using mobile location data in biomedical research while preserving privacy.Journal of the American Medical Informatics Association : JAMIA · 2018
    Article
  4. Anonymisation of geographical distance matrices via Lipschitz embedding.International journal of health geographics · 2016
    Article
  5. SHARE: system design and case studies for statistical health information release.Journal of the American Medical Informatics Association : JAMIA · 2013
    Article
  6. Estimating the re-identification risk of clinical data sets.BMC medical informatics and decision making · 2012
    Article
  7. Trends in biomedical informatics: most cited topics from recent years.Journal of the American Medical Informatics Association : JAMIA · 2011
    Article
  8. The re-identification risk of Canadians from longitudinal demographics.BMC medical informatics and decision making · 2011
    Article
  9. A secure protocol for protecting the identity of providers when disclosing data for disease surveillance.Journal of the American Medical Informatics Association : JAMIA · 2011
    Article
  10. Article
  11. Article
  12. Review
  13. Protecting count queries in study design.Journal of the American Medical Informatics Association : JAMIA
    Article
  14. Evaluating re-identification risks with respect to the HIPAA privacy rule.Journal of the American Medical Informatics Association : JAMIA
    Article
  15. A globally optimal k-anonymity method for the de-identification of health data.Journal of the American Medical Informatics Association : JAMIA
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Khaled El EmamChildren's Hospital of Eastern Ontario Research Institute, Pediatrics, Faculty of Medicine, University of Ottawa, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada. kelemam@uottawa.ca
Ann Brown
Philip AbdelMalik

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveIn public health and health services research, the inclusion of geographic information in data sets is critical. Because of concerns over the re-identification of patients, data from small geographic areas are either suppressed or the geographic areas are aggregated into larger ones. Our objective is to estimate the population size cut-off at which a geographic area is sufficiently large so that no data suppression or further aggregation is necessary.

designThe 2001 Canadian census data were used to conduct a simulation to model the relationship between geographic area population size and uniqueness for some common demographic variables. Cut-offs were computed for geographic area population size, and prediction models were developed to estimate the appropriate cut-offs. MEASUREMENTS: Re-identification risk was measured using uniqueness. Geographic area population size cut-offs were estimated using the maximum number of possible values in the data set and a traditional entropy measure.

resultsThe model that predicted population cut-offs using the maximum number of possible values in the data set had R2 values around 0.9, and relative error of prediction less than 0.02 across all regions of Canada. The models were then applied to assess the appropriate geographic area size for the prescription records provided by retail and hospital pharmacies to commercial research and analysis firms.

conclusionsTo manage re-identification risk, the prediction models can be used by public health professionals, health researchers, and research ethics boards to decide when the geographic area population size is sufficiently large.

Indexed as

ConfidentialityGeographyMedical Records Systems, ComputerizedPopulation DensityCanadaCensusesDemographyHealth Services ResearchHumansModels, TheoreticalRisk

Identifiers

PMID19074299
PMCPMC2649314

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.