ReviewBritish journal of cancer2009
Ethics and biobanks.
Review in British journal of cancer, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 63 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
63 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature.European journal of human genetics : EJHG · 2024Pooled it
- Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.European journal of human genetics : EJHG · 2015Pooled it
- Ethical aspects of human biobanks: a systematic review.Croatian medical journal · 2011Pooled it
- Impact of non-welfare interests on willingness to donate to biobanks: an experimental survey.Journal of empirical research on human research ethics : JERHRE · 2014Trial
- Ethical and Regulation Aspects Relevant to the Study of Reproduction in Wild Species.Advances in experimental medicine and biology · 2026Review
- Age-related differences in axon pruning and myelination may alter neural signaling in autism spectrum disorder.Molecular autism · 2025Article
- Biobanks as an Indispensable Tool in the "Era" of Precision Medicine: Key Role in the Management of Complex Diseases, Such as Melanoma.Journal of personalized medicine · 2024Review
- Stakeholder views on future use of biological samples in Malawi and South Africa.Global bioethics enquiry · 2023Article
- Genetic and Genomic Researchers' Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study.Journal of empirical research on human research ethics : JERHRE · 2023Article
- Stakeholder views on informed consent models for future use of biological samples in Malawi and South Africa.BMC medical ethics · 2023Article
- Evaluating models of consent in changing health research environments.Medicine, health care, and philosophy · 2022Article
- It is not a big deal: a qualitative study of clinical biobank donation experience and motives.BMC medical ethics · 2022Article
- Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium.BMC medical ethics · 2021Review
- The Urgent Need for Management of Biological Samples and Data Accessibility in Latin America.Frontiers in pharmacology · 2021Article
- Recommendations for the development of Egyptian human biobanking ethical guidelines.Wellcome open research · 2021Article
- Knowledge, perceptions and attitude of Egyptian physicians towards biobanking issues.PloS one · 2021Article
- Race, Trust in Doctors, Privacy Concerns, and Consent Preferences for Biobanks.Health communication · 2020Article
- Biobanks-A Platform for Scientific and Biomedical Research.Diagnostics (Basel, Switzerland) · 2020Review
- Dwarna: a blockchain solution for dynamic consent in biobanking.European journal of human genetics : EJHG · 2020Article
- Pathology and Biobanking.Turk patoloji dergisi · 2020Review
3 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Biobank research has been the focus of great interest of scholars and regulatory bodies who have addressed different ethical issues. On the basis of a review of the literature it may be concluded that, regarding some major themes in this discussion, a consensus seems to emerge on the international scene after the regular exchange of arguments in scientific journals. Broad or general consent is emerging as the generally preferred solution for biobank studies and straightforward instructions for coding will optimise privacy while facilitating research that may result in new methods for the prevention of disease and for medical treatment. The difficult question regarding the return of information to research subjects is the focus of the current research, but a helpful analysis of some of the issues at stake and concrete recommendations have recently been suggested.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.