Genomic anonymity: have we already lost it?

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

13 citing papers in PubMed.

1. Attitudes of Costa Rican individuals towards donation of personal genetic data for research.Personalized medicine · 2021
   Article
2. An overview of human genetic privacy.Annals of the New York Academy of Sciences · 2017
   Review
3. The real cost of sequencing: scaling computation to keep pace with data generation.Genome biology · 2016
   Article
4. Securely measuring the overlap between private datasets with cryptosets.PloS one · 2015
   Article
5. Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policy. European Society of Human Genetics and European Society of Human Reproduction and Embryology.European journal of human genetics : EJHG · 2013
   Article
6. How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples.Journal of medical ethics · 2012
   Article
7. RSEQtools: a modular framework to analyze RNA-Seq data using compact, anonymized data summaries.Bioinformatics (Oxford, England) · 2011
   Article
8. Assessing the privacy risks of data sharing in genomics.Public health genomics · 2011
   Article
9. Caught you: threats to confidentiality due to the public release of large-scale genetic data sets.BMC medical ethics · 2010
   Article
10. Designing and managing a flexible and dynamic biorepository system: a 15-year perspective from the CPCRA, ESPRIT, and INSIGHT clinical trial networks.Current opinion in HIV and AIDS · 2010
    Review
11. Personal genome sequencing: current approaches and challenges.Genes & development · 2010
    Article
12. Eyes wide open: the personal genome project, citizen science and veracity in informed consent.Personalized medicine · 2009
    Article
13. Public access to genome-wide data: five views on balancing research with privacy and protection.PLoS genetics · 2009
    Article

Corrections and comments

• Comment on
  Patients' views on identifiability of samples and informed consent for genetic research.2008

Authors and funding

3 authors.

Funding

No grant is acknowledged in the PubMed record.

Abstract

PubMed holds no abstract for this paper.

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