Evidence map›Paper›PMID 18974036›Full record

ArticleJournal of medical Internet research2008

Patient accessible electronic health records: exploring recommendations for successful implementation strategies.

David Wiljer, Sara Urowitz, Emma Apatu, Claudette DeLenardo, Gunther Eysenbach, Tamara Harth, Howard Pai, Kevin J Leonard, Canadian Committee for Patient Accessible Health Records

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 78 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
78citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

78 citing papers in PubMed, 5 syntheses or guidelines pooled it.

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  4. Patients' online access to their electronic health records and linked online services: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2015
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  16. Unintended consequences of patient online access to health records: a qualitative study in UK primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2023
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18 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

David WiljerUniversity Health Network, 610 University Avenue, 5-973, Princess Margaret Hospital, Toronto, ON M5G 2M9, Canada. David.Wiljer@uhn.on.ca
Sara Urowitz
Emma Apatu
Claudette DeLenardo
Gunther Eysenbach
Tamara Harth
Howard Pai
Kevin J Leonard
Canadian Committee for Patient Accessible Health Records

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundProviding patients with access to their electronic health records offers great promise to improve patient health and satisfaction with their care, as well to improve professional and organizational approaches to health care. Although many benefits have been identified, there are many questions about best practices for the implementation of patient accessible Electronic Health Records (EHRs).

objectivesTo develop recommendations to assist health care organizations in providing patients with access to EHRs in a meaningful, responsible, and responsive manner.

methodsA Patient Accessible Electronic Health Record (PAEHR) Workshop was held with nationally and internationally renowned experts to explore issues related to providing patient access to the EHR and managing institutional change.

resultsThe PAEHR Workshop was attended by 45 participants who discussed recommendations for the implementation of patient accessible EHRs. Recommendations were discussed under four subject domains: (1) providing patient access to the EHR, (2) maintaining privacy and confidentiality related to the PAEHR, (3) patient education and navigation of the PAEHR, and (4) strategies for managing institutional change. The discussion focused on the need for national infrastructure, clear definitions for privacy, security and confidentiality, flexible, interoperable solutions, and patient and professional education. In addition, there was a strong call for research into all domains of patient accessible EHRs to ensure the adoption of evidence-based practices.

conclusionsPatient access to personal health information is a fundamental issue for patient engagement and empowerment. Health care professionals and organizations should consider the potential benefits and risks of patient access when developing EHR strategies. Flexible, standardized, and interoperable solutions must be integrated with outcomes-based research to activate effectively patients as partners in their health care.

Indexed as

Medical RecordsAttitude to ComputersComputer SecurityConfidentialityHospital Information SystemsHumansInformation ManagementInformation SystemsMedical Records Systems, ComputerizedPatient Access to Records

Identifiers

PMID18974036
PMCPMC2629367

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.