ArticleJournal of genetic counseling2008
Decisions about testing and termination of pregnancy for different fetal conditions: a qualitative study of European White and Pakistani mothers of affected children.
Article in Journal of genetic counseling, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Abortion Experiences and Perspectives Amongst Migrants and Refugees: A Systematic Review.International journal of environmental research and public health · 2024Pooled it
- Pooled it
- Parents' perceptions of diagnostic genetic testing for children with inherited retinal disease in China.Molecular genetics & genomic medicine · 2019Trial
- Decisional conflict and regret: shared decision-making about pregnancy affected by β-thalassemia major in Southeast of Iran.Journal of human genetics · 2018Article
- Decisions Regarding Pregnancy Termination Due to β-Thalassemia Major: a Mixed-Methods Study in Sistan and Baluchestan, Iran.Journal of genetic counseling · 2017Article
- Decision-making on terminating pregnancy for Muslim Arab women pregnant with fetuses with congenital anomalies: maternal affect and doctor-patient communication.Reproductive health · 2017Article
- Will the introduction of non-invasive prenatal testing for Down's syndrome undermine informed choice?Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Acceptability of prenatal testing and termination of pregnancy in Pakistan.Journal of community genetics · 2015Article
- Parental decision-making for medically complex infants and children: an integrated literature review.International journal of nursing studies · 2014Review
- Attitude of medical school students in China towards genetic testing and counseling issues in FXS.Journal of genetic counseling · 2013Article
- Understanding of and attitudes to genetic testing for inherited retinal disease: a patient perspective.The British journal of ophthalmology · 2013Article
- Variables influencing pregnancy termination following prenatal diagnosis of fetal chromosome abnormalities.Journal of genetic counseling · 2013Article
- Imagined futures: how experiential knowledge of disability affects parents' decision making about fetal abnormality.Health expectations : an international journal of public participation in health care and health policy · 2012Article
- Socioeconomic inequalities in outcome of pregnancy and neonatal mortality associated with congenital anomalies: population based study.BMJ (Clinical research ed.) · 2011Article
- Risk and reproductive decisions: British Pakistani couples' responses to genetic counselling.Social science & medicine (1982) · 2011Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The aim of this study is to explore reasons for and against prenatal testing and termination for a range of conditions in women from two different ethnic backgrounds. A total of 19 Pakistani and European women in West Yorkshire, UK, who either had a child with a genetic condition or had terminated a pregnancy for one, completed a questionnaire about their attitudes regarding prenatal testing and termination for 30 different fetal conditions and were interviewed about their reasons for their responses. There were more similarities than differences between the Pakistani and European white women. The most important factor in most women's decisions about termination of pregnancy was their perception of the quality of the life of a child with the genetic condition, in particular, whether the child would be "suffering." This was described as either physical suffering, as a result of medical treatment, or as emotional suffering, as a result of psychological and/or social factors. These findings highlight the need for detailed information about the potential quality of life for the child and the child's family to enable parents to make informed choices, particularly the extent to which the child is likely to suffer, the nature of such potential "suffering" and the extent to which the child could lead a "normal" life. The findings also challenge stereotypes about cultural differences in attitudes about termination of pregnancy.
Indexed as
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.