ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2009
Overall information needs of early-stage prostate cancer patients over a decade: highly variable and remarkably stable.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Is there evidence for a better health care for cancer patients after a second opinion? A systematic review.Journal of cancer research and clinical oncology · 2016Pooled it
- Health-Related Internet Use Among Men With Prostate Cancer in Canada: Cancer Registry Survey Study.Journal of medical Internet research · 2019Article
- User-testing an interactive option grid decision aid for prostate cancer screening: lessons to improve usability.BMJ open · 2019Article
- Prostate cancer patients' experience and preferences for acquiring information early in their care.Canadian Urological Association journal = Journal de l'Association des urologues du Canada · 2018Article
- Prostate myths: What is the prostate awareness in the general male population in Turkey?Turkish journal of urology · 2014Article
- Information needs of early-stage prostate cancer patients: within- and between-group agreement of patients and health professionals.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2014Article
- Meeting the health information needs of prostate cancer patients using personal health records.Current oncology (Toronto, Ont.) · 2013Article
- [Elderly prostate cancer patients: patient information and shared decision making].Der Urologe. Ausg. A · 2013Observational
- A longitudinal study of changes in provider-patient interaction in treatment of localized prostate cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2012Article
- 'They're doing surgery on two people': a meta-ethnography of the influences on couples' treatment decision making for prostate cancer.Health expectations : an international journal of public participation in health care and health policy · 2010Article
- Development of a scale to assess patient misperceptions about treatment choices for localized prostate cancer.BJU international · 2010Article
- Quality and reliability of prostate cancer-Videos on TikTok and Bilibili: Cross-sectional content analysis study.Digital healthArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo assess the stability of information needs of early-stage prostate cancer patients by comparing needs in the same location, at two time points, almost 10 years apart.
methodTwo groups of patients were surveyed (first, 1996; second, 2005) to identify retrospectively their information needs in the diagnosis-to-treatment-decision time interval. Both sampling cohorts were men diagnosed in one location in Canada within the previous 2 years. Participants rated the importance of getting answers to each of 92 questions (organized in eight categories) using four options: essential, desired, no opinion, or avoid. For each essential and desired question, respondents also indicated the reason(s) they wanted the question addressed: to understand, decide, plan, or other.
resultsThe two groups had similar response rates: 38 (68%) in 1996 and 130 (70%) in 2005. They also had similar ages, marital status, or education. Both groups rated means of: 49 questions "essential" with wide ranges across respondents (12-90 vs 0-92 questions); 73 questions as "essential"/"desired"; and two questions to "avoid". At both times, every question was essential to some participants but only six (in 1996) and 12 (in 2005) questions were essential to over 80% of participants. In both groups, the most frequent reason for essential questions was for understanding (mean number of questions 34 vs 36), followed by decision making (means 13 vs 19), and then planning (means 10 vs 15).
conclusionsWe have demonstrated reliably that, although many patients want a lot of information, the range in amount and in exact details varies considerably across individuals. Systematic patient education is needed, therefore, but it must be individualized.
Indexed as
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.