ArticleBMJ (Clinical research ed.)2008
Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups.
Article in BMJ (Clinical research ed.), 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 67 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
67 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- The effectiveness of knowledge-sharing techniques and approaches in research funded by the National Institute for Health and Care Research (NIHR): a systematic review.Health research policy and systems · 2024Pooled it
- International palliative care research priorities: A systematic review.BMC palliative care · 2020Pooled it
- Do Patients Want to Die at Home? A Systematic Review of the UK Literature, Focused on Missing Preferences for Place of Death.PloS one · 2015Pooled it
- End-of-life care conversations with heart failure patients: a systematic literature review and narrative synthesis.The British journal of general practice : the journal of the Royal College of General Practitioners · 2011Pooled it
- Clinical effectiveness of online training in palliative care of primary care physicians.Journal of palliative medicine · 2013Trial
- Early identification of and proactive palliative care for patients in general practice, incentive and methods of a randomized controlled trial.BMC family practice · 2011Trial
- Palliative care and vascular surgery: status quo, needs, barriers and current challenges from the perspective of vascular surgery specialists.BMC palliative care · 2026Article
- Palliative care perceptions and well-being in nurses across healthcare settings: a comparative study from Reggio Emilia, Northern Italy.BMC palliative care · 2025Article
- The role and position of palliative care nurses within the Dutch healthcare system: a mixed-methods study.BMC nursing · 2025Article
- Setting Regional Priorities for Palliative and End-of-Life Care Research Using a Delphi Technique Approach.Journal of palliative care · 2025Article
- The impact of area deprivation on access to and utilization of health services in the last year of life: A retrospective population-based cohort study.Palliative care and social practice · 2025Article
- Integrating palliative care into primary healthcare systems: Advocacy efforts, milestones and challenges in Asia.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2024Article
- Are We Consulting, Sharing Care, or Taking Over? A Conceptual Framework.Palliative medicine reports · 2024Article
- Why patients in specialist palliative care in-patient settings are at high risk of falls and falls-related harm: A realist synthesis.Palliative medicine · 2022Article
- Intention of healthcare providers to use video-communication in terminal care: a cross-sectional study.BMC palliative care · 2022Article
- Using Normalization Process Theory to Evaluate an End-of-Life Pediatric Palliative Care Web-Based Training Program for Nurses: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2022Article
- Translation and Cross-Cultural Adaptation of the Supportive and Palliative Care Indicators Tool into Japanese: A Preliminary Report.Palliative medicine reports · 2022Article
- Generating key practice points that enable optimal palliative care in acute hospitals: Results from the OPAL project's mid-point meta-inference.International journal of nursing studies advances · 2021Article
- Added Value of Early Consultation of an Inpatient Palliative Care Team in Hospitalized Older Patients With High Symptom Burden: A Prospective Comparative Study.The American journal of hospice & palliative care · 2021Article
- Frequency of providing a palliative approach to care in family practice: a chart review and perceptions of healthcare practitioners in Canada.BMC family practice · 2021Article
7 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
16 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo identify major concerns of national and local importance in the provision, commissioning, research, and use of generalist end of life care.
designA national consultation and prioritising exercise using a modified form of the nominal group technique.
participantsHealthcare practitioners, commissioners, academics, and representatives of user and voluntary groups.
settingPrimary and secondary care, specialist palliative care, and academic and voluntary sectors in England and Scotland.
results74% of those invited (210/285) participated. The stage of life to which "end of life care" referred was not understood in a uniform way. Perceptions ranged from a period of more than a year to the last few days of life. Prominent concerns included difficulties in prognosis and the availability of adequate support for patients with advanced non-malignant disease. Generalists in both primary and secondary care were usually caring for only a few patients approaching the end of life at any one time at a point in time. It was therefore challenging to maintain skills and expertise particularly as educational opportunities were often limited. End of life care took place among many other competing and incentivised activities for general practitioners in the community. More needs to be known about models of end of life care and how these can be integrated in a generalist's workload. A greater evidence base is needed about the effectiveness and application of current tools such as the gold standards framework and Liverpool care pathway and about models of palliation in patients with diseases other than cancer.
conclusionsDefinitions of end of life care need clarification and standardisation. A greater evidence base is needed to define models of good practice together with a commitment to provide education and training and adequate resources for service provision. More needs to be known about the context of provision and the influence of competing priorities and incentives.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.