SynthesisHealth expectations : an international journal of public participation in health care and health policy2008
A systematic review of decision support needs of parents making child health decisions.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 86 papers, 13 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
86 citing papers in PubMed, 13 syntheses or guidelines pooled it.
- Parents' experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis.Palliative medicine · 2024Pooled it
- Factors that influence parents' and informal caregivers' views and practices regarding routine childhood vaccination: a qualitative evidence synthesis.The Cochrane database of systematic reviews · 2021Pooled it
- Early Emotional, Behavioural and Social Development of Infants and Young Children with Congenital Heart Disease: A Systematic Review.Journal of clinical psychology in medical settings · 2020Pooled it
- Communication of children's weight status: what is effective and what are the children's and parents' experiences and preferences? A mixed methods systematic review.BMC public health · 2020Pooled it
- Parental Decision-Making and Deaf Children: A Systematic Literature Review.Journal of deaf studies and deaf education · 2018Pooled it
- Measuring trust in vaccination: A systematic review.Human vaccines & immunotherapeutics · 2018Pooled it
- Parents' and informal caregivers' views and experiences of communication about routine childhood vaccination: a synthesis of qualitative evidence.The Cochrane database of systematic reviews · 2017Pooled it
- Interventions for promoting participation in shared decision-making for children with cancer.The Cochrane database of systematic reviews · 2016Pooled it
- The psychological impact of genetic information on children: a systematic review.Genetics in medicine : official journal of the American College of Medical Genetics · 2016Pooled it
- Cancer survivorship services for indigenous peoples: where we stand, where to improve? A systematic review.Journal of cancer survivorship : research and practice · 2016Pooled it
- Early Traumatic Stress Responses in Parents Following a Serious Illness in Their Child: A Systematic Review.Journal of clinical psychology in medical settings · 2016Pooled it
- Interventions to support children's engagement in health-related decisions: a systematic review.BMC pediatrics · 2014Pooled it
- Psychosocial impact of lymphedema: a systematic review of literature from 2004 to 2011.Psycho-oncology · 2013Pooled it
- Enhancing parental health knowledge through digital knowledge mobilisation tools: a randomised controlled trial and qualitative study.BMJ paediatrics open · 2026Trial
- Randomised cluster trial to support informed parental decision-making for the MMR vaccine.BMC public health · 2011Trial
- Clinician insights into pediatric temporary feeding tube management: Unseen barriers, unclear roles revealed from a prospective mixed methods study.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026Article
- Service providers' adaptations to facilitate family-centered care for children with cerebral palsy: a qualitative study.BMC primary care · 2026Article
- Perceptions of GLP-1 RA Use for Children With Obesity Among Caregivers With Food Insecurity: A Qualitative Study.JAMA network open · 2026Article
- Exploring parental perspectives of physiotherapy in children with congenital heart disease: a qualitative study.BMJ paediatrics open · 2025Article
- 'Feeling like you can't do anything because you don't know where to start'-Parents' Perspectives of Barriers and Facilitators to Accessing Early Detection for Children at Risk of Cerebral Palsy.Child: care, health and development · 2025Article
26 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
objectiveTo identify the decision support needs of parents attempting to make an informed health decision on behalf of a child. CONTEXT: The first step towards implementing patient decision support is to assess patients' information and decision-making needs. SEARCH STRATEGY: A systematic search of key bibliographic databases for decision support studies was performed in 2005. Reference lists of relevant review articles and key authors were searched. Three relevant journals were hand searched. INCLUSION CRITERIA: Non-intervention studies containing data on decision support needs of parents making child health decisions. DATA EXTRACTION AND SYNTHESIS: Data were extracted on study characteristics, decision focus and decision support needs. Studies were quality assessed using a pre-defined set of criteria. Data synthesis used the UK Evidence for Policy and Practice Information and Co-ordinating Centre approach. MAIN
resultsOne-hundred and forty nine studies were included across various child health decisions, settings and study designs. Thematic analysis of decision support needs indicated three key issues: (i) information (including suggestions about the content, delivery, source, timing); (ii) talking to others (including concerns about pressure from others); and (iii) feeling a sense of control over the process that could be influenced by emotionally charged decisions, the consultation process, and structural or service barriers. These were consistent across decision type, study design and whether or not the study focused on informed decision making.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.