Ethical and practical issues associated with aggregating databases.

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

15 citing papers in PubMed.

1. Implementing partnership-driven clinical federated electronic health record data sharing networks.International journal of medical informatics · 2016
   Article
2. Big Data: the challenge for small research groups in the era of cancer genomics.British journal of cancer · 2015
   Review
3. How to build an integrated biobank: the Washington University Translational Cardiovascular Biobank & Repository experience.Clinical and translational science · 2013
   Article
4. Navigating legal constraints in clinical data warehousing: a case study in personalized medicine.Interface focus · 2013
   Article
5. Ethical issues in health research with novel online sources.American journal of public health · 2012
   Article
6. Bioethical considerations in developing a biorepository for the Pneumonia Etiology Research for Child Health project.Clinical infectious diseases : an official publication of the Infectious Diseases Society of America · 2012
   Review
7. Building a diabetes screening population data repository using electronic medical records.Journal of diabetes science and technology · 2011
   Article
8. Establishing a follow-up of the Swiss MONICA participants (1984-1993): record linkage with census and mortality data.BMC public health · 2010
   Article
9. Genomic research and wide data sharing: views of prospective participants.Genetics in medicine : official journal of the American College of Medical Genetics · 2010
   Article
10. Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.BMC medical ethics · 2010
    Review
11. Meeting the governance challenges of next-generation biorepository research.Science translational medicine · 2010
    Article
12. Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research.Journal of investigative medicine : the official publication of the American Federation for Clinical Research · 2010
    Article
13. Data sharing in genomics--re-shaping scientific practice.Nature reviews. Genetics · 2009
    Review
14. Progress Toward Cancer Data Ecosystems.Cancer journal (Sudbury, Mass.)
    Review
15. iDASH: integrating data for analysis, anonymization, and sharing.Journal of the American Medical Informatics Association : JAMIA
    Article

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

Authors and funding

15 authors.

Funding

Abstract

PubMed holds no abstract for this paper.

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