ArticleHealth expectations : an international journal of public participation in health care and health policy2008
Exploring informed choice in the context of prenatal testing: findings from a qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 69 citations in OpenAlex.
- Exploring measurement tools used to assess knowledge, attitudes, and perceptions of pregnant women toward prenatal screening: A systematic review.Women's health (London, England)Pooled it
- Attitudes About NIPT Routinisation: A Report from a Qualitative Study of 20 UK Healthcare Professionals.Health care analysis : HCA : journal of health philosophy and policy · 2026Article
- Time for a New Norm: Experiences of 'Being Informed' and 'Having Choice' for Prenatal Screening for Chromosomal Conditions: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- "Knowledge was clearly associated with education." epistemic positioning in the context of informed choice: a scoping review and secondary qualitative analysis.BMC medical ethics · 2025Article
- Article
- Pregnant women's attitudes and decision-making regarding prenatal Down syndrome screening and diagnosis: scale development and validation.BMC pregnancy and childbirth · 2020Article
- The value of non-invasive prenatal testing: preferences of Canadian pregnant women, their partners, and health professionals regarding NIPT use and access.BMC pregnancy and childbirth · 2019Article
- Facilitating autonomous, confident and satisfying choices: a mixed-method study of women's choice-making in prenatal screening for common aneuploidies.BMC pregnancy and childbirth · 2018Article
- Experience as knowledge: Disability, distillation and (reprogenetic) decision-making.Social science & medicine (1982) · 2017Article
- Considering medical risk information and communicating values: A mixed-method study of women's choice in prenatal testing.PloS one · 2017Article
- Development and validation of a measure of informed choice for women undergoing non-invasive prenatal testing for aneuploidy.European journal of human genetics : EJHG · 2016Article
- It's complicated - Factors predicting decisional conflict in prenatal diagnostic testing.Health expectations : an international journal of public participation in health care and health policy · 2016Article
- A routine tool with far-reaching influence: Australian midwives' views on the use of ultrasound during pregnancy.BMC pregnancy and childbirth · 2015Article
- An easy test but a hard decision: ethical issues concerning non-invasive prenatal testing for autosomal recessive disorders.European journal of human genetics : EJHG · 2015Article
- Non-invasive prenatal testing: UK genetic counselors' experiences and perspectives.Journal of genetic counseling · 2015Article
- The limited effect of information on Israeli pregnant women at advanced maternal age who decide to undergo amniocentesis.Israel journal of health policy research · 2015Article
- A design process for using normative models in shared decision making: a case study in the context of prenatal testing.Health expectations : an international journal of public participation in health care and health policy · 2014Article
- Is advice incompatible with autonomous informed choice? Women's perceptions of advice in the context of antenatal screening: a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2014Article
- Offering prenatal diagnostic tests: European guidelines for clinical practice [corrected].European journal of human genetics : EJHG · 2014Article
- Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study.PloS one · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis study explored whether and how a sample of women made informed choices about prenatal testing for foetal anomalies; its aim was to provide insights for future health policy and service provision.
methodsWe conducted semi-structured interviews with 38 mothers in Ottawa, Ontario, all of whom had been offered prenatal tests in at least one pregnancy. Using the Multi-dimensional Measure of Informed Choice as a general guide to analysis, we explored themes relevant to informed choice, including values and knowledge, and interactions with health professionals.
resultsMany, but not all, participants seemed to have made informed decisions about prenatal testing. Values and knowledge were interrelated and important components of informed choice, but the way they were discussed differed from the way they have been presented in scientific literature. In particular, 'values' related to expressions of women's moral views or ideas about 'how life should be lived' and 'knowledge' related to the ways in which women prioritized and interpreted factual information, through their own and others' experiences and in 'thinking through' the personal implications of testing. While some women described non-directive discussions with health professionals, others perceived testing as routine or felt pressured to accept it.
conclusionsOur findings suggest a need for maternity care providers to be vigilant in promoting active decision making about prenatal testing, particularly around the consideration of personal implications. Further development of measures of informed choice may be necessary to fully evaluate decision support tools and to determine whether prenatal testing programmes are meeting their objectives.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.