ArticleCanadian journal of public health = Revue canadienne de sante publique
Personal privacy and public health: potential impacts of privacy legislation on health research in Canada.
Article in Canadian journal of public health = Revue canadienne de sante publique. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed.
- An assessment of synthetic data generation, use and disclosure under Canadian privacy regulations.AI and ethics · 2025Article
- Facilitating the ethical use of health data for the benefit of society: electronic health records, consent and the duty of easy rescue.Philosophical transactions. Series A, Mathematical, physical, and engineering sciences · 2016Article
- A telephone survey of factors affecting willingness to participate in health research surveys.BMC public health · 2015Article
- DeID - a data sharing tool for neuroimaging studies.Frontiers in neuroscience · 2015Article
- Meeting the privacy requirements for the development of a multi-centre patient registry in Canada: the Rick Hansen Spinal Cord Injury Registry.Healthcare policy = Politiques de sante · 2013Article
- Recruitment of healthy first-trimester pregnant women: lessons from the Chemicals, Health & Pregnancy study (CHirP).Maternal and child health journal · 2012Article
- Methods for the de-identification of electronic health records for genomic research.Genome medicine · 2011Article
- Article
- A globally optimal k-anonymity method for the de-identification of health data.Journal of the American Medical Informatics Association : JAMIAArticle
- Understanding identifiability in secondary health data.Canadian journal of public health = Revue canadienne de sante publiqueArticle
- Public opinions about participating in health research.Canadian journal of public health = Revue canadienne de sante publiqueArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Despite variation in Canadian privacy laws between provinces and territories, increasing legislative protection of personal privacy has imposed restrictions on health research across the country. The effects of these restrictions on patient recruitment include increased study costs, durations, and decreased participation rates. Low participation rates can jeopardize the validity of research findings and the accuracy of measures of association by introducing non-response, or participation bias. We constructed simulations to assess potential effects of non-response bias on the accuracy of measures of association in a hypothetical case-control study. Small biases that alter the probability of selecting an exposed case can lead to dramatic inflation or attrition of the odds ratio (OR) in case-control studies. ORs are more unstable and subject to error when the true probability of selecting an exposed case is greater, such that strong positive associations are subject to error even at low levels of bias. Well-powered, population-based epidemiological research is a cornerstone of public health. Therefore, when weighing the benefits of protecting personal privacy, the benefits of valid and robust health research must also be considered. Options might include special legislative treatment of health research, or the use of an "opt-out" (vs. the current "opt-in") construct for consent in confidential research.
Indexed as
Identifiers
18767274PMC6975712What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.