ArticleJournal of the American Medical Informatics Association : JAMIA
A research agenda for personal health records (PHRs).
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02970461 (Gamifying Patient's Personal Data Validation and Completion in a Personal Health Record), which is not on this map. Cited by 118 papers, 11 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Gamifying Patient's Personal Data Validation and Completion in a Personal Health Record
Who cites it
118 citing papers in PubMed, 11 syntheses or guidelines pooled it.
- Enhancing Patient Understanding of Laboratory Test Results: Systematic Review of Presentation Formats and Their Impact on Perception, Decision, Action, and Memory.Journal of medical Internet research · 2024Pooled it
- Functionalities and Issues in the Implementation of Personal Health Records: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Functions and Outcomes of Personal Health Records for Patients with Chronic Diseases: A Systematic Review.Perspectives in health information managemen · 2021Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- Personal Health Records: A Systematic Literature Review.Journal of medical Internet research · 2017Pooled it
- The impact of health information technology on cancer care across the continuum: a systematic review and meta-analysis.Journal of the American Medical Informatics Association : JAMIA · 2016Pooled it
- Conditions potentially sensitive to a personal health record (PHR) intervention, a systematic review.BMC medical informatics and decision making · 2015Pooled it
- User-held personalised information for routine care of people with severe mental illness.The Cochrane database of systematic reviews · 2013Pooled it
- The impact of electronic patient portals on patient care: a systematic review of controlled trials.Journal of medical Internet research · 2012Pooled it
- Are personal health records safe? A review of free web-accessible personal health record privacy policies.Journal of medical Internet research · 2012Pooled it
- Patient engagement in the inpatient setting: a systematic review.Journal of the American Medical Informatics Association : JAMIAPooled it
- Trial
- Effects of a Web-based intervention for adults with chronic conditions on patient activation: online randomized controlled trial.Journal of medical Internet research · 2012Trial
- Electronic patient messages to promote colorectal cancer screening: a randomized controlled trial.Archives of internal medicine · 2011Trial
- Health literacy and task environment influence parents' burden for data entry on child-specific health information: randomized controlled trial.Journal of medical Internet research · 2011Trial
- Heterogeneity in willingness to share personal health information: a nationwide cluster analysis of 20,000 adults in Japan.Archives of public health = Archives belges de sante publique · 2025Article
- The impact of confidentiality and privacy concerns on behavioral intention to adopt electronic personal health records among chronic patients in southwest Ethiopia in 2023: an application of the UTAUT2 model.Frontiers in digital health · 2025Article
- Intention to use personal health records and associated factors among healthcare providers in southwest Oromia region referral hospitals, Ethiopia: using the modified unified theory of acceptance and use technology 2 model.Frontiers in digital health · 2025Article
- Impact of encounters on patient app use: results of a tethered mobile personal health record usage pattern analysis.BMC health services research · 2024Article
- A machine learning approach using conditional normalizing flow to address extreme class imbalance problems in personal health records.BioData mining · 2024Article
58 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patients, policymakers, providers, payers, employers, and others have increasing interest in using personal health records (PHRs) to improve healthcare costs, quality, and efficiency. While organizations now invest millions of dollars in PHRs, the best PHR architectures, value propositions, and descriptions are not universally agreed upon. Despite widespread interest and activity, little PHR research has been done to date, and targeted research investment in PHRs appears inadequate. The authors reviewed the existing PHR specific literature (100 articles) and divided the articles into seven categories, of which four in particular--evaluation of PHR functions, adoption and attitudes of healthcare providers and patients towards PHRs, PHR related privacy and security, and PHR architecture--present important research opportunities. We also briefly discuss other research related to PHRs, PHR research funding sources, and PHR business models. We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.