Evidence map›Paper›PMID 18756002›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA

A research agenda for personal health records (PHRs).

David C Kaelber, Ashish K Jha, Douglas Johnston, Blackford Middleton, David W Bates

Registry-linked trialAbstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02970461 (Gamifying Patient's Personal Data Validation and Completion in a Personal Health Record), which is not on this map. Cited by 118 papers, 11 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
118citing papers in PubMed, 11 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02970461 naunknown statusnot on this map

Gamifying Patient's Personal Data Validation and Completion in a Personal Health Record

TypeinterventionalSponsorHospital Italiano de Buenos AiresRan2016 to 2016Enrolled40,000ConditionsChronic DiseaseArmsGamified Group, Control Group
3 · Its place in the literature

Who cites it

118 citing papers in PubMed, 11 syntheses or guidelines pooled it.

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  5. Personal Health Records: A Systematic Literature Review.Journal of medical Internet research · 2017
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  11. Patient engagement in the inpatient setting: a systematic review.Journal of the American Medical Informatics Association : JAMIA
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58 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

David C KaelberPartners HealthCare Information Systems, Boston MA, USA. david.kaelber@case.edu
Ashish K Jha
Douglas Johnston
Blackford Middleton
David W Bates

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patients, policymakers, providers, payers, employers, and others have increasing interest in using personal health records (PHRs) to improve healthcare costs, quality, and efficiency. While organizations now invest millions of dollars in PHRs, the best PHR architectures, value propositions, and descriptions are not universally agreed upon. Despite widespread interest and activity, little PHR research has been done to date, and targeted research investment in PHRs appears inadequate. The authors reviewed the existing PHR specific literature (100 articles) and divided the articles into seven categories, of which four in particular--evaluation of PHR functions, adoption and attitudes of healthcare providers and patients towards PHRs, PHR related privacy and security, and PHR architecture--present important research opportunities. We also briefly discuss other research related to PHRs, PHR research funding sources, and PHR business models. We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency.

Indexed as

Health Services ResearchMedical Records Systems, ComputerizedAttitude to HealthConfidentialityHumansMedical RecordsPatient Access to RecordsPatient Participation

Identifiers

PMID18756002
PMCPMC2585530

What OpenQuestion holds

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Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.