ArticleThe Gerontologist2008
The end-of-life experience in long-term care: five themes identified from focus groups with residents, family members, and staff.
Article in The Gerontologist, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06239688 (Evaluating a National Person-Centered Training Program to Strengthen the Dementia Care Workforce), which is not on this map. Cited by 26 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Evaluating a National Person-Centered Training Program to Strengthen the Dementia Care Workforce
Who cites it
26 citing papers in PubMed, 102 citations in OpenAlex.
- A Mixed-Methods Study of End-of-Life Care in Assisted Living During the COVID-19 Pandemic: National Survey of Administrators and In-Depth Interviews With Bereaved Next of Kin.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Taking Action to Support Nursing Home Resident Well-Being: Perspectives of U.S. Nursing Home Staff During COVID-19.The Gerontologist · 2024Article
- Nurses' perceptions of how their professional autonomy influences the moral dimension of end-of-life care to nursing home residents- a qualitative study.BMC nursing · 2024Article
- "You gotta have your cry": Administrator and direct care worker experiences of death in assisted living.Journal of aging studies · 2022Article
- Just and inclusive end-of-life decision-making for long-term care home residents with dementia: a qualitative study protocol.BMC palliative care · 2022Article
- Article
- Organizational Characteristics of Assisted Living Communities With Policies Supportive of Admitting and Retaining Residents in Need of End-of-Life Care.The American journal of hospice & palliative care · 2021Article
- Protocol for a participatory study for developing qualitative instruments measuring the quality of long-term care relationships.BMJ open · 2018Article
- [Wishes of nursing home residents for their dying].Zeitschrift fur Gerontologie und Geriatrie · 2018Article
- Still Searching: A Meta-Synthesis of a Good Death from the Bereaved Family Member Perspective.Behavioral sciences (Basel, Switzerland) · 2017Review
- Measuring Family Members' Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire.BioMed research international · 2017Article
- Family Members' Experience With Hospice in Nursing Homes.The American journal of hospice & palliative care · 2016Article
- Conversations about End of Life: Perspectives of Nursing Home Residents, Family, and Staff.Journal of palliative medicine · 2015Article
- Provider Perspectives on the Influence of Family on Nursing Home Resident Transfers to the Emergency Department: Crises at the End of Life.Current gerontology and geriatrics research · 2015Article
- Development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C): item generation and content validity testing.BMC family practice · 2014Article
- "This is our last stop": Negotiating end-of-life transitions in assisted living.Journal of aging studies · 2014Article
- National hospice survey results: for-profit status, community engagement, and service.JAMA internal medicine · 2014Article
- Blended e-learning and end of life care in nursing homes: a small-scale mixed-methods case study.BMC palliative care · 2014Article
- Hospice use among nursing home patients.Journal of the American Medical Directors Association · 2013Article
- Influence of hospice on nursing home residents with advanced dementia who received Medicare-skilled nursing facility care near the end of life.Journal of the American Geriatrics Society · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
purposeWe designed this study to examine the end-of-life (EOL) experience in long-term care (LTC) based on input from key stakeholders. DESIGN AND
methodsThe study consisted of 10 homogeneous focus groups drawn from a purposive sample of LTC residents (2 groups; total n = 11), family caregivers (2 groups; total n = 19), paraprofessional staff (3 groups; total n = 20), and licensed/registered staff (3 groups; total n = 15) from five nursing homes and eight residential care/assisted living communities in North Carolina. We analyzed data by using grounded theory techniques to elicit manifest and latent themes.
resultsFive overarching themes emerged: (a) components of a good death in LTC, (b) normalcy of dying in LTC, (c) the role of relationships in the provision and receipt of care, (d) hospice contributions to care at the EOL in LTC, and (e) stakeholder recommendations for enhancing EOL care in these settings. Underlying these themes was one central category, closeness, based on physical proximity and frequency of contact. IMPLICATIONS: Findings suggest that promoting collaborative relationships among the four stakeholder groups, increasing social worker involvement, and removing barriers to hospice may enhance the EOL experience in LTC.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.