ArticleFamilial cancer2009
The FAP self-concept scale (adult form).
Article in Familial cancer, 2009. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed, 14 citations in OpenAlex.
- Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer.Journal of genetic counseling · 2015Article
- Sense of coherence and self-concept in Lynch syndrome.Hereditary cancer in clinical practice · 2013Article
- Limited impact on self-concept in individuals with Lynch syndrome; results from a national cohort study.Familial cancer · 2011Article
- Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome.Clinical genetics · 2011Article
- Validation of a self-concept scale for Lynch syndrome in different nationalities.Journal of genetic counseling · 2011Article
- Survivor centrality among breast cancer survivors: implications for well-being.Psycho-oncology · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 5 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
unlabelledFamilial Adenomatous Polyposis (FAP) is a dominantly inherited disorder characterized by multiple colorectal adenomas associated with a 100% risk of early colorectal cancer. A diagnosis of FAP may alter a person's self-concept, which in turn may impact on an individual's quality of life and screening behaviors. PURPOSE: The purpose of the study was to develop and validate a scale for measuring the impact of being diagnosed with FAP on an individual's self-concept.
methodsThe study was conducted in two phases: Phase (1) Item generation and refinement, and Phase (2) Scale selection and initial validation. Adults age 18 and older.
resultsDuring Phase 1, scale items were generated through individual interviews and two professionally led focus groups. In Phase 2, 132/200 (66%) participants completed the 41-item candidate scale and a battery of standardized validating measures. The mean age of participants was 48 (12.2) years (range 21-74), 57% were female, 72% were married and 69% were Anglo-Canadian. The study resulted in a 23-item valid and reliable scale, Cronbach's alpha = .92, inter-item correlation = .34, total variance explained = 52.6%, low correlation with social desirability, and expected relationships with the other validating measures. Factor analysis resulted in three subscales representing the dimensions of stigma, self-esteem and mastery.
conclusionsA promising new scale for measuring self-concept among adults with FAP has been developed. The instrument has potential use as a clinical screening tool and a research measure that will contribute to the empirical and theoretical literature.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.