ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2007
Towards consumer-friendly PHRs: patients' experience with reviewing their health records.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
40 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Interventions to increase patient portal use in vulnerable populations: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019Pooled it
- Comparison of user groups' perspectives of barriers and facilitators to implementing electronic health records: a systematic review.BMC medicine · 2011Pooled it
- The military health system's personal health record pilot with Microsoft HealthVault and Google Health.Journal of the American Medical Informatics Association : JAMIATrial
- Chatbot To Help Patients Understand Their Health.Proceedings of the Conference on Empirical Methods in Natural Language Processing. Conference on Empirical Methods in Natural Language Processing · 2025Article
- Patient Health Record Protection Beyond the Health Insurance Portability and Accountability Act: Mixed Methods Study.Journal of medical Internet research · 2024Article
- A Computationally-guided Qualitative Analysis to Understand User Experiences with Different Types of Mobile Personal Health Records.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Patient experience of imaging reports: A systematic literature review.Ultrasound (Leeds, England) · 2023Review
- The Role of Computer Skills in Personal Health Record Adoption Among Patients With Heart Disease: Multidimensional Evaluation of Users Versus Nonusers.JMIR human factors · 2021Article
- Creating patient-centered radiology reports to empower patients undergoing prostate magnetic resonance imaging.Canadian Urological Association journal = Journal de l'Association des urologues du Canada · 2021Article
- Evaluation of lexical clarification by patients reading their clinical notes: a quasi-experimental interview study.BMC medical informatics and decision making · 2020Article
- Perspective of Patients with Metastatic Breast Cancer on Electronic Access to Scan Results: Mixed-Methods Study.Journal of medical Internet research · 2020Article
- A method for harmonization of clinical abbreviation and acronym sense inventories.Journal of biomedical informatics · 2018Article
- Methods for Patient-Centered Interface Design of Test Result Display in Online Portals.EGEMS (Washington, DC) · 2018Article
- Effect of Harm Anchors in Visual Displays of Test Results on Patient Perceptions of Urgency About Near-Normal Values: Experimental Study.Journal of medical Internet research · 2018Article
- Assessing the Readability of Medical Documents: A Ranking Approach.JMIR medical informatics · 2018Article
- A Natural Language Processing System That Links Medical Terms in Electronic Health Record Notes to Lay Definitions: System Development Using Physician Reviews.Journal of medical Internet research · 2018Article
- Text Simplification Using Consumer Health Vocabulary to Generate Patient-Centered Radiology Reporting: Translation and Evaluation.Journal of medical Internet research · 2017Article
- Ranking Medical Terms to Support Expansion of Lay Language Resources for Patient Comprehension of Electronic Health Record Notes: Adapted Distant Supervision Approach.JMIR medical informatics · 2017Article
- Patient portals and health apps: Pitfalls, promises, and what one might learn from the other.Healthcare (Amsterdam, Netherlands) · 2017Article
- Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results.Journal of the American Medical Informatics Association : JAMIA · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Consumer-friendly Personal Health Records (PHRs) have the potential of providing patients with the basis for taking an active role in their healthcare. However, few studies focused on the features that make health records comprehensible for lay audiences. This paper presents a survey of patients' experience with reviewing their health records, in order to identify barriers to optimal record use. The data are analyzed via descriptive statistical and thematic analysis. The results point to providers' notes, laboratory test results and radiology reports as the most difficult records sections for lay reviewers. Professional medical terminology, lack of explanations of complex concepts (e.g., lab test ranges) and suboptimal data ordering emerge as the most common comprehension barriers. While most patients today access their records in paper format, electronic PHRs present much more opportunities for providing comprehension support.
Indexed as
Identifiers
18693866PMC2655877What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.