ArticleJournal of cancer survivorship : research and practice2008
The UK Expert Patients Program: lessons learned and implications for cancer survivors' self-care support programs.
Article in Journal of cancer survivorship : research and practice, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
15 citing papers in PubMed.
- Peer support to maintain psychological wellbeing in people with advanced cancer: findings from a feasibility study for a randomised controlled trial.BMC palliative care · 2020Trial
- Development of an expert patient program for improving self-efficacy in surgical patients with advanced gastric cancer in China: a COREQ-guided qualitative expert panel discussion study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Empowering people affected by penile cancer: towards a model for supportive self-management.International journal of impotence research · 2025Review
- Article
- Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program.Journal of medical Internet research · 2020Article
- Evaluation Design of EFFICHRONIC: The Chronic Disease Self-Management Programme (CDSMP) Intervention for Citizens with a Low Socioeconomic Position.International journal of environmental research and public health · 2019Article
- "It's like a mirror image of my illness": Exploring Patient Perceptions About Illness Using Health Mind Mapping-a Qualitative Study.Journal of general internal medicine · 2018Article
- Perspectives of Women Considering Bilateral Prophylactic Mastectomy and their Peers towards a Telephone-Based Peer Support Intervention.Journal of genetic counseling · 2018Article
- Cancer survivors' perspectives on adjustment-focused self-management interventions: a qualitative meta-synthesis.Journal of cancer survivorship : research and practice · 2016Review
- Art therapy using famous painting appreciation maintains fatigue levels during radiotherapy in cancer patients.Radiation oncology journal · 2016Article
- Introducing the chronic disease self-management program in Switzerland and other German-speaking countries: findings of a cross-border adaptation using a multiple-methods approach.BMC health services research · 2015Article
- Patient perceptions and expectations of an anticoagulation service: a quantitative comparison study of clinic-based testers and patient self-testers.Scandinavian journal of caring sciences · 2015Article
- Quality of life and disease understanding: impact of attending a patient-centered cancer symposium.Cancer medicine · 2015Article
- Healthcare cost savings estimator tool for chronic disease self-management program: a new tool for program administrators and decision makers.Frontiers in public health · 2015Article
- Challenges to evaluating complex interventions: a content analysis of published papers.BMC public health · 2013Article
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Globally, the enablement of self-care is increasingly being recognised as an essential component of chronic disease management. Within the UK a key self-care policy initiative is the Expert Patients Program. Developed from the Chronic Disease Self-Management Program, this is a 6 week self-management education program for people with different chronic diseases, facilitated by lay volunteers. As an example of a major public health initiative designed to enhance self-management in long-term conditions, this paper draws on evaluations of the EPP and CDSMP and analyzes the implications for the development of similar programs for cancer survivors. There are a number of evaluations of the CDSMP which suggest significant improvement in participants' chronic disease management self-efficacy and some evidence of healthcare utilization reduction. However, whilst the national evaluation of the EPP demonstrated similar improvements in self-efficacy and health status, there was no significant effect on healthcare utilization. Trials of such programs need to be treated with some caution as participants are often not typical of the general population, and as a complex intervention effectiveness is inherently difficult to assess. Qualitative evaluations revealed that the EPP's strength was derived mainly through peer support and learning. Nevertheless, a number of contextual problems were identified including recruitment, clinicians' lack of engagement with the program and inflexible course materials. Lay-led self-care support programs such as the EPP have a significantly positive effect on self-efficacy which could be of benefit to cancer survivors. However, a number of lessons should be learned from the EPP when developing similar initiatives for cancer survivors.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.