ArticleHealth expectations : an international journal of public participation in health care and health policy2008
Information needs and preferences of low and high literacy consumers for decisions about colorectal cancer screening: utilizing a linguistic model.
Article in Health expectations : an international journal of public participation in health care and health policy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT00765869 (A Randomised Controlled Trial of a Bowel Cancer Screening Decision Aid for Adults With Low Education and Literacy), which is not on this map. Cited by 30 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Randomised Controlled Trial of a Bowel Cancer Screening Decision Aid for Adults With Low Education and Literacy
Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 81 citations in OpenAlex.
- The impact of bowel dysfunction on health-related quality of life after rectal cancer surgery: a systematic review.Techniques in coloproctology · 2022Pooled it
- Addressing health literacy in patient decision aids.BMC medical informatics and decision making · 2013Pooled it
- Effects by educational attainment of a mammography screening patient decision aid for women aged 75 years and older.Cancer · 2021Trial
- Use of Two Self-referral Reminders and a Theory-Based Leaflet to Increase the Uptake of Flexible Sigmoidoscopy in the English Bowel Scope Screening Program: Results From a Randomized Controlled Trial in London.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2018Trial
- Trial
- Evaluation of an Australian health literacy training program for socially disadvantaged adults attending basic education classes: study protocol for a cluster randomised controlled trial.BMC public health · 2016Trial
- A decision aid to support informed choices about bowel cancer screening among adults with low education: randomised controlled trial.BMJ (Clinical research ed.) · 2010Trial
- Do audio-guided decision aids improve outcomes? A randomized controlled trial of an audio-guided decision aid compared with a booklet decision aid for Australian women considering labour analgesia.Health expectations : an international journal of public participation in health care and health policy · 2009Trial
- Evaluation of a New Performance-Based Health Literacy Measurement Tool for Individuals With Chronic Airways Disease.Respiratory care · 2023Article
- Information Needs of People With Limited Health Literacy Regarding a New "Opt-Out" Organ Donation System: A Qualitative Study in the Netherlands.Transplant international : official journal of the European Society for Organ Transplantation · 2022Article
- Health Literacy, Language, and Cancer-Related Needs in the First 6 Months After a Breast Cancer Diagnosis.JCO oncology practice · 2020Article
- Health Literacy Influences Men's Active and Passive Cancer Information Seeking.Health literacy research and practice · 2019Article
- Evaluation of an Australian Health Literacy Program Delivered in Adult Education Settings.Health literacy research and practice · 2019Article
- User-testing an interactive option grid decision aid for prostate cancer screening: lessons to improve usability.BMJ open · 2019Article
- Questionnaire Validation of Colorectal Cancer Literacy Scale among Thai People in Northeastern ThailandAsian Pacific journal of cancer prevention : APJCP · 2019Article
- A Linguistic Analysis of Health Literacy Demands of Chronic Kidney Disease Patient Education Materials.Health literacy research and practice · 2018Article
- Informing Public Perceptions About Climate Change: A 'Mental Models' Approach.Science and engineering ethics · 2017Article
- The McMaster Optimal Aging Portal: Usability Evaluation of a Unique Evidence-Based Health Information Website.JMIR human factors · 2016Article
- Views of People With High and Low Levels of Health Literacy About a Digital Intervention to Promote Physical Activity for Diabetes: A Qualitative Study in Five Countries.Journal of medical Internet research · 2015Article
- How do people interpret information about colorectal cancer screening: observations from a think-aloud study.Health expectations : an international journal of public participation in health care and health policy · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
contextThe use of written decision aids (DAs) in clinical practice has proliferated. However, few DAs have been developed for low literacy users, despite this group having low knowledge about healthcare and lacking involvement in health decisions.
objectiveTo explore the information needs and understanding of adults with varying literacy in relation to colorectal cancer screening, and to consider their responses to two versions of a decision aid. Participants Thirty-three men and women aged 45-74 years were recruited from Adult Basic Education classes (n = 17) and University Continuing Education programs (n = 16).
methodsWe used qualitative methods (in-depth, semi-structured interviews) to compare and contrast the views of adults with lower and higher literacy levels, to gain a better understanding of how people with lower literacy value and interpret specific DA content and components; and determine whether needs and preferences are specific to lower literacy groups or generic across the broad literacy spectrum.
resultsRegardless of literacy perspective, participants' interpretations of the DA were shaped by their prior knowledge and expectations, as well as their values and preferences. This influenced perceptions of the DAs role in supporting informed decision making. A linguistic theoretical model was applied to interpret the findings. This facilitated considerations beyond the traditional focus on the readability of materials.
conclusionDecision aids developers may find it useful to apply alternative approaches (linguistic) when creating DAs for consumers of varying literacy.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.