ArticleHealth expectations : an international journal of public participation in health care and health policy2008
The patient movement as an emancipation movement.
Article in Health expectations : an international journal of public participation in health care and health policy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- A patienthood that transcends the patient: An analysis of patient research partners' narratives of involvement in a Canadian arthritis patient advisory board.Journal of health services research & policy · 2024Article
- Patient oriented research in mental health: matching laboratory to life and beyond in Canada.Research involvement and engagement · 2021Article
- The emancipation of patients: a theory whose time has come.The British journal of general practice : the journal of the Royal College of General Practitioners · 2019Article
- Representing Whom? U.K. Health Consumer and Patients' Organizations in the Policy Process.Journal of bioethical inquiry · 2018Article
- The relevance of different trust models for representation in patient organizations: conceptual considerations.BMC health services research · 2017Article
- Care planning for long-term conditions – a concept mapping.Health expectations : an international journal of public participation in health care and health policy · 2015Review
- Problematization of perspectives on health promotion and empowerment in mental health nursing--within the research network "MeHNuRse" and the Horatio conference, 2012.International journal of qualitative studies on health and well-being · 2014Review
- Overall scores as an alternative to global ratings in patient experience surveys; a comparison of four methods.BMC health services research · 2013Article
- eHealth program to empower patients in returning to normal activities and work after gynecological surgery: intervention mapping as a useful method for development.Journal of medical Internet research · 2012Article
- Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives.Health expectations : an international journal of public participation in health care and health policy · 2011Article
Corrections and comments
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Authors and funding
1 author.
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Abstract
objectiveTo suggest that the patient movement is an emancipation movement.
backgroundThe patient movement is young and fragmented; and it can seem confusing because it lacks an explicit ideology with intellectual and theoretical underpinnings.
methodsDrawing mainly on the experiences and the published writings of patient activists, the author identified eight aspects of the patient movement that could be compared with aspects of recognized emancipation movements: the radicalization of activists; the creation of new knowledge; the identification of guiding principles; the sense of direction; the unmasking of new issues; schisms within the movement and allies outside it; and the gradual social acceptance of some of the ideas (here standards of health care) that activists work to promote.
resultsSimilarities between certain aspects of the patient movement and of the recognized emancipation movements were close.
conclusionThe patient movement can be regarded as an emancipation movement, albeit an immature one.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.