Communicating the results of clinical research to participants: attitudes, practices, and future directions.

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

133 citing papers in PubMed, 4 syntheses or guidelines pooled it.

1. Current global practice and implications for future research on disseminating health research results to study participants: A systematic review.PLoS medicine · 2025
   Pooled it
2. The effectiveness of interventions to disseminate the results of non-commercial randomised clinical trials to healthcare professionals: a systematic review.Implementation science : IS · 2024
   Pooled it
3. Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2012
   Guideline
4. Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.Circulation. Cardiovascular genetics · 2010
   Guideline
5. Dissemination of trial results to study participants in Cambodia, Ethiopia and Pakistan: a qualitative study.BMJ open · 2026
   Trial
6. Low-dose titrated amitriptyline as second-line treatment for adults with irritable bowel syndrome in primary care: the ATLANTIS RCT.Health technology assessment (Winchester, England) · 2024
   Trial
7. Testing approaches to sharing trial results with participants: The Show RESPECT cluster randomised, factorial, mixed methods trial.PLoS medicine · 2021
   Trial
8. Feasibility of reporting results of large randomised controlled trials to participants: experience from the Fluoxetine Or Control Under Supervision (FOCUS) trial.BMJ open · 2020
   Trial
9. Study design factors influencing patients' willingness to participate in clinical research: a randomised vignette-based study.BMC medical research methodology · 2020
   Trial
10. Disclosure of research results: a randomized study on GENEPSO-PS cohort participants.Health expectations : an international journal of public participation in health care and health policy · 2016
    Trial
11. Altruism, personal benefit, and anxieties: a phenomenological study of healthy volunteers' experiences in a placebo-controlled trial of duloxetine.Human psychopharmacology · 2016
    Trial
12. Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.Journal of empirical research on human research ethics : JERHRE · 2015
    Trial
13. Expectation of volunteers towards the vaccine efficacy of the prime-boost HIV vaccine phase III trial during unblinding.AIDS research and human retroviruses · 2014
    Trial
14. Impact of personalised feedback about physical activity on change in objectively measured physical activity (the FAB study): a randomised controlled trial.PloS one · 2013
    Trial
15. A post-trial survey to assess the impact of dissemination of results and unmasking on participants in a 13-year randomised controlled trial on age-related cataract.Trials · 2011
    Trial
16. Participants' preference for type of leaflet used to feed back the results of a randomised trial: a survey.Trials · 2010
    Trial
17. Participants' uptake of clinical trial results: a randomised experiment.British journal of cancer · 2010
    Trial
18. Closing the Feedback Loop: Improving Communication of Findings With Aboriginal Research Participants Through Participatory Action Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
19. Willingness to donate biosamples to a national biobank in Israel: a population-based cross-sectional survey.Israel journal of health policy research · 2026
    Article
20. PROTOCOL: Comparative Effectiveness of Tools for Communicating Health Research Results to Study Participants and Others With Relevant Lived Experience: A Living Systematic Review of Randomized Controlled Trials.Campbell systematic reviews · 2026
    Review

73 more citing papers are in PubMed but not listed here.

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

Authors and funding

2 authors.

Funding

No grant is acknowledged in the PubMed record.

Abstract

PubMed holds no abstract for this paper.

Indexed as