ReviewQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2008
Health-related quality-of-life measures for long-term follow-up in children after major trauma.
Review in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of studies measuring health-related quality of life of general injury populations.BMC public health · 2010Pooled it
- Efficacy of an Attachment-Based Intervention Model on Health Indices in Children with Chronic Disease and Their Mothers.Administration and policy in mental health · 2018Trial
- A multidisciplinary approach to assessing the impact of local therapy in pediatric bone sarcoma patients and survivors: a cross-sectional study of adverse events and health-related quality of life.EClinicalMedicine · 2025Article
- The "Bergamo Approach" for Pediatric and Adolescent Polytrauma-A One-Center Experience.Children (Basel, Switzerland) · 2025Article
- Quality of Life after Brain Injury in children aged six and seven years (QOLIBRI-KIDDY) - development and scale analysis of the first disease-specific self-report instrument for young children after traumatic brain injury.Journal of patient-reported outcomes · 2025Article
- A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Final Validation of the Quality of Life after Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) Questionnaire.Children (Basel, Switzerland) · 2024Article
- Post-PICU sleep efficiency and quality of life in infants and toddlers with acquired brain injury.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2024Article
- Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO)-The First Disease-Specific Self-Report Questionnaire after Traumatic Brain Injury.Journal of clinical medicine · 2023Article
- Quality of Life in Romanian Children with Type 1 Diabetes: A Cross-Sectional Survey Using an Interdisciplinary Healthcare Intervention.Healthcare (Basel, Switzerland) · 2020Article
- Randomized comparative study of child and caregiver responses to three software functions added to the Japanese version of the electronic Pediatric Quality of Life Inventory (ePedsQL) questionnaire.Journal of patient-reported outcomes · 2020Article
- Article
- Maternal and child health after injuries: a two-year follow-up of a nationally representative sample.Public health · 2019Article
- Disparities in Non-Fatal Health Outcomes in Pediatric General Trauma Studies.International journal of environmental research and public health · 2017Review
- Pain Beliefs and Quality of Life in Young People With Disabilities and Bothersome Pain.The Clinical journal of pain · 2017Article
- Health-Related Quality of Life and Function after Paediatric Injuries in India: A Longitudinal Study.International journal of environmental research and public health · 2017Article
- International Classification of Diseases 10th edition-based disability adjusted life years for measuring of burden of specific injury.Clinical and experimental emergency medicine · 2016Article
- A longitudinal study on quality of life after injury in children.Health and quality of life outcomes · 2016Article
- Pediatric Canadian Triage and Acuity Scale (PaedsCTAS) as a Measure of Injury Severity.International journal of environmental research and public health · 2016Article
- Six years beyond pediatric trauma: child and parental ratings of children's health-related quality of life in relation to parental mental health.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveOur objective was to review measures of health-related quality of life (HRQL) for long-term follow up in children after major trauma and to determine the measures that are suitable for a large age range, reliable and valid, and cover a substantial amount of the domains of functioning using the International Classification of Functioning, Disability, and Health (ICF) of the World Health Organization (WHO).
methodsThe Medline and EMBASE databases were searched in all years up to October 2007 for generic HRQL measures suitable for children aged 5-18 years old and validated in English or Dutch. Measures were reviewed with respect to the age range for which the measure was suitable and reliability, validity, and content related to the ICF.
resultsThe search resulted in 1,235 hits and 21 related articles. Seventy-nine papers met the inclusion criteria, describing in total 14 measures: Child Health and Illness Profile Adolescent and Child Edition (CHIP-AE/CE), Child Health Questionnaire Child and Parent Forms (CHQ-CF87/PF50/PF28), DISABKIDS, Functional Status II (FS II)(R), Health Utilities Index Mark 2 (HUI 2), KIDSCREEN 52/27, KINDL, Pediatric Quality of Life Inventory (PedsQL), TNO Institute of Prevention and Health and the Leiden University Hospital (TNO-AZL), TNO-AZL Children's Quality Of Life (TACQOL), and Youth Quality of Life Instrument--Research Version (YQOL-R). Measures that were suitable for a large age range were CHQ-PF50/PF28, DISABKIDS, FS II(R), HUI 2, KIDSCREEN, PedsQL, and TACQOL. All measures had moderate to good psychometric properties, except for CHQ-PF50/PF28, KINDL, and TACQOL, which had either low internal consistency or bad test-retest reliability. The measures that covered more than six chapters of the ICF domains were CHIP-AE/CE, CHQ-CF87/PF50, DISABKIDS, KIDSCREEN-52, PedsQL, and TACQOL.
conclusionsDISABKIDS, KIDSCREEN 52, and PedsQL are suitable for long-term follow-up measurement of HRQL in children after major trauma. They cover a large age range, have good psychometric properties, and cover the ICF substantially.
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