ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2008
Quality of life in age-related macular degeneration: a review of available vision-specific psychometric tools.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 78 citations in OpenAlex.
- The management of neovascular age-related macular degeneration: A systematic literature review of patient-reported outcomes, patient mental health and caregiver burden.Acta ophthalmologica · 2023Pooled it
- Vision related quality of life in patients with type 2 diabetes in the EUROCONDOR trial.Endocrine · 2017Trial
- Trial
- Predicting EQ-5D utility scores from the 25-item National Eye Institute Vision Function Questionnaire (NEI-VFQ 25) in patients with age-related macular degeneration.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2009Trial
- Exploring patient-reported outcomes to assess progress in inpatient low vision rehabilitation.Journal of patient-reported outcomes · 2025Article
- Structural validity of the impact of vision impairment questionnaire among patients with visual impairment in Thailand.Heliyon · 2024Article
- Development and Validation of Performance-Based Assessment of Daily Living Tasks in Age-Related Macular Degeneration.Translational vision science & technology · 2024Article
- Piloting Rasch model scoring of the National Eye Institute Visual Function Questionnaire in uveitis.Journal of ophthalmic inflammation and infection · 2024Article
- The 6-Item Vision-Related Quality of Life and Limitations Questionnaire: Evaluation of Psychometric Properties.Translational vision science & technology · 2024Article
- Neovascular age-related macular degeneration: disease pathogenesis and current state of molecular biomarkers predicting treatment response-a scoping review.BMJ open ophthalmology · 2024Article
- Relationships between Patient-Reported Outcome Measures and Clinical Measures in Naïve Neovascular Age-Related Macular Degeneration Patients Treated with Intravitreal Ranibizumab.Pharmaceuticals (Basel, Switzerland) · 2024Article
- The NEI VFQ-25C: Calibrating Items in the National Eye Institute Visual Function Questionnaire-25 to Enable Comparison of Outcome Measures.Translational vision science & technology · 2022Article
- Biomarkers as Predictive Factors of Anti-VEGF Response.Biomedicines · 2022Review
- Multimodal Evaluation of Visual Function in Geographic Atrophy versus Normal Eyes.Clinical ophthalmology (Auckland, N.Z.) · 2020Article
- Article
- Analysis on the psychological characteristics of patients with acute iridocyclitis.International journal of ophthalmology · 2015Article
- Driving habits in older patients with central vision loss.Ophthalmology · 2014Article
- Pars plana vitrectomy for disturbing primary vitreous floaters: clinical outcome and patient satisfaction.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2013Article
- Visual acuity changes in patients with leber congenital amaurosis and mutations in CEP290.JAMA ophthalmology · 2013Article
- [Measurement of glaucoma-specific functionality with the GQL-15 and correlation with parameters of visual function].Der Ophthalmologe : Zeitschrift der Deutschen Ophthalmologischen Gesellschaft · 2011Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAge-related macular degeneration (AMD) has a considerable impact on older adults' independence and autonomy. Recently, patient reported outcomes (PROs) such as QoL have been met with increasing interest by the scientific community, healthcare payers and planners. Against this background, the multitude of psychometric tools used to measure QoL in AMD was reviewed.
methodsA search of the literature from 1990 onwards yielded 355 results, out of which 58 publications were included in the review. Data regarding design, validation and extent of utilization were obtained where available.
resultsThe National Eye Institute-Visual Function Questionnaire (NEI VFQ-25-item) was found to be the most often used (29% of studies) and best validated psychometric tool, followed by the Visual Function Questionnaire (VF-14; 17%), and the Impact of Vision Impairment Profile (IVI; 9%). Most tools that were identified have been validated for the use in AMD patients.
conclusionPsychometric tools specifically designed to measure vision-related quality of life are well equipped and validated to measure QoL in AMD. More recent developments such as the Macular Disease-dependent Quality of Life (MacDQoL) questionnaire might be able to depict dimensions of vision-related QoL in greater depth. Future studies should endeavour to use a suggested standard when gathering data on vision related QoL, allowing for international comparisons.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.