ArticleJournal of perinatology : official journal of the California Perinatal Association2008
The health-care experiences of families given the prenatal diagnosis of trisomy 18.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Communicating neurological prognosis in the prenatal period: a narrative review and practice guidelines.Pediatric research · 2025Guideline
- Hope pluralism in antenatal palliative care.Journal of medical ethics · 2025Article
- Healthcare professionals' discussion of loss and grief with parents of children with life-limiting severe neurological impairment: Findings from a scoping review.Palliative & supportive care · 2025Article
- "She was finally mine": the moral experience of families in the context of trisomy 13 and 18- a scoping review with thematic analysis.BMC medical ethics · 2024Article
- Never "totally prepared": Support groups on helping families prepare for a child with a genetic condition.Journal of community genetics · 2023Article
- The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.Children (Basel, Switzerland) · 2022Article
- Outcomes following perinatal palliative care consultation: a retrospective review.Journal of perinatology : official journal of the California Perinatal Association · 2021Article
- An Exploration of the Emotive Experiences and the Representations of Female Care Providers Working in a Perinatal Hospice. A Pilot Qualitative Study.Clinical neuropsychiatry · 2021Article
- Palliative Care and Grief Counseling in Peri- and Neonatology: Recommendations From the German PaluTiN Group.Frontiers in pediatrics · 2020Article
- Perinatal Palliative Care: A qualitative study evaluating the perspectives of pregnancy counselors.Palliative medicine · 2019Article
- Parent Perspectives of Support Received from Physicians and/or Genetic Counselors Following a Decision to Continue a Pregnancy with a Prenatal Diagnosis of Trisomy 13/18.Journal of genetic counseling · 2018Article
- Negotiating acceptable termination of pregnancy for non-lethal fetal anomaly: a qualitative study of professional perspectives.BMJ open · 2018Article
- Treatment Decisions for Babies with Trisomy 13 and 18.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2017Article
- Health-care provider communication with expectant parents during a prenatal diagnosis: an integrative review.Journal of perinatology : official journal of the California Perinatal Association · 2017Review
- Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States.Prenatal diagnosis · 2016Article
- "Have no regrets:" Parents' experiences and developmental tasks in pregnancy with a lethal fetal diagnosis.Social science & medicine (1982) · 2016Article
- Clinical features and survival in individuals with trisomy 18: A retrospective one-center study of 44 patients who received intensive care treatments.Molecular medicine reports · 2016Article
- A routine tool with far-reaching influence: Australian midwives' views on the use of ultrasound during pregnancy.BMC pregnancy and childbirth · 2015Article
- Ethical language and decision-making for prenatally diagnosed lethal malformations.Seminars in fetal & neonatal medicine · 2014Review
- Trisomy 18 syndrome: Towards a balanced approach.Sudanese journal of paediatrics · 2014Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe objective of this study was to examine parent-reported experiences in the health care system after receiving the prenatal diagnosis of trisomy 18 and to identify factors that contribute to satisfaction with care. STUDY
designNineteen families who received the diagnosis between 2002 and 2005 were given semistructured telephone interviews. Of the 19 families, 11 continued the pregnancy while the remaining 8 chose induced abortion. Classical content analysis was utilized to identify themes among subject responses.
resultWe identified several specific aspects of care as key in either being highly satisfied or dissatisfied: expressions of empathy from provider, continuity of care, communication, valuing the fetus and participation in medical decision-making.
conclusionsAspects of care that were identified as reasons for dissatisfaction are potentially modifiable by training, education or team-based approaches. Further studies are necessary to determine how we can improve the quality of services during prenatal diagnosis.
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18165828What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.