ArticleHealth care analysis : HCA : journal of health philosophy and policy2008
Advocating mandatory patient 'autonomy' in healthcare: adverse reactions and side effects.
Article in Health care analysis : HCA : journal of health philosophy and policy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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Who cites it
19 citing papers in PubMed.
- The role of large language models in improving the readability of orthopaedic spine patient educational material.Journal of orthopaedic surgery and research · 2025Article
- Patient-centred care and patient autonomy: doctors' views in Chinese hospitals.BMC medical ethics · 2022Article
- Interventions Incorporating Therapeutic Alliance to Improve Medication Adherence in Black Patients with Diabetes, Hypertension and Kidney Disease: A Systematic Review.Patient preference and adherence · 2022Review
- Doctors as Appointed Fiduciaries: A Supplemental Model for Medical Decision-Making.Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees · 2022Article
- Grounded theory qualitative approach from Foucault's ethical perspective: Deconstruction of patient self-determination in the clinical setting.World journal of clinical cases · 2021Review
- Treatment Regret, Mental and Physical Health Indicators of Psychosocial Well-Being among Prostate Cancer Survivors.Current oncology (Toronto, Ont.) · 2021Article
- Surgery during COVID-19 crisis conditions: can we protect our ethical integrity against the odds?Journal of medical ethics · 2020Article
- Wanting to or having to - a qualitative study of experiences and attitudes towards migrant screening for tuberculosis in Norway.BMC public health · 2019Article
- "What would you recommend doctor?"-Discourse analysis of a moment of dissonance when sharing decisions in clinical consultations.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Shared decision making: relevant concepts and facilitating strategies.Epidemiology and health · 2017Article
- Is Shared Decision Making a Utopian Dream or an Achievable Goal?The patient · 2015Article
- How can we best respect patient autonomy in breast cancer treatment decisions?Breast cancer management · 2015Article
- Governance mechanisms in the physician-patient relationship: a literature review and conceptual framework.Health expectations : an international journal of public participation in health care and health policy · 2013Review
- Treating patients as persons: a capabilities approach to support delivery of person-centered care.The American journal of bioethics : AJOB · 2013Article
- Power and powerlessness: GPs' narratives about lifestyle counselling.The British journal of general practice : the journal of the Royal College of General Practitioners · 2012Article
- Situationally-sensitive knowledge translation and relational decision making in hyperacute stroke: a qualitative study.PloS one · 2012Article
- Withdrawal rates as a consequence of disclosure of risk associated with manipulation of the cervical spine.Chiropractic & osteopathy · 2010Article
- Supporting patient autonomy: the importance of clinician-patient relationships.Journal of general internal medicine · 2010Review
- Arduous implementation: does the Normalisation Process Model explain why it's so difficult to embed decision support technologies for patients in routine clinical practice.Implementation science : IS · 2008Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Promoting patient autonomy has become a key imperative in health service encounters. We will examine the potential negative effects of over-promoting patient autonomy and consider the impact on patient access, their experience and the provision of equitable services by focusing on an extreme manifestation of this trend, i.e. calls for patient involvement in health care decision making to be mandatory. Advocates of mandatory autonomy hold that patients have a duty to themselves, to society and to the medical system to make decisions on their health care independently. Models of mandatory autonomy may be contrasted to those of optional autonomy that seek to ascertain patients' decisional preferences and to understand wider limitations on their freedom to choose. Where choice as decisional responsibility becomes mandatory it ceases to promote agency and where autonomous choice is understood as an individualistic practice it will contribute to the cultural dominance of Western values. Moreover, taking a view that principlist ethics needs to take account of the social and cultural contexts of individual lives, we argue that if mandatory autonomy were to be over-emphasised as part of an ongoing move towards patient choice in UK National Health Service (NHS), educated and affluent people would be more able to exercise choices at the expense of people who are experienced in asserting preferences and who have the resources to make use of choices. We will argue that the promotion of autonomy needs to be tempered by steps to enable less powerful social, cultural and economic groups to contribute to decision making and to support individuals who may feel abandoned by having decisional responsibility transferred to them. Until constraints on individual choice can be understood and addressed, we advocate the model of optional autonomy used in shared decision making and make recommendations for practice, policy, education and research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.