ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2008
Specialized palliative care services are associated with improved short- and long-term caregiver outcomes.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
34 citing papers in PubMed, 2 syntheses or guidelines pooled it, 112 citations in OpenAlex.
- A systematic review of perinatal palliative care models: challenges and opportunities for the future.European journal of pediatrics · 2025Pooled it
- European Society of Intensive Care Medicine guidelines on end of life and palliative care in the intensive care unit.Intensive care medicine · 2024Guideline
- Family Caregiver Depressive Symptom and Grief Outcomes From the ENABLE III Randomized Controlled Trial.Journal of pain and symptom management · 2016Trial
- Community-based palliative care service provision framework (PALLIUM framework) in a resource-limited setting.Ecancermedicalscience · 2026Article
- Family Caregiver Problems in Outpatient Palliative Oncology.Journal of palliative medicine · 2021Article
- Assessment of Caregiving Burden of Family Caregivers of Advanced Cancer Patients and Their Satisfaction with the Dedicated Inpatient Palliative Care Provided to Their Patients: A Cross-Sectional Study from a Tertiary Care Centre in South Asia.Asian Pacific journal of cancer prevention : APJCP · 2021Article
- Modelling palliative and end-of-life resource requirements during COVID-19: implications for quality care.BMJ open · 2021Article
- Prevention and management of respiratory disease in young people with cerebral palsy: consensus statement.Developmental medicine and child neurology · 2021Article
- Earlier multidisciplinary palliative care intervention for people with lung cancer: a systematic review and meta-analysis.Translational lung cancer research · 2020Review
- Article
- Proceedings from the 2018 Canadian Association for the Study of the Liver Single Topic Conference-Decompensated cirrhosis: from clinic to transplant.Canadian liver journal · 2019Review
- Impact of In-Hospital Death on Spending for Bereaved Spouses.Health services research · 2018Observational
- Background and design of the symptom burden in end-stage liver disease patient-caregiver dyad study.Research in nursing & health · 2017Article
- Primary palliative care for heart failure: what is it? How do we implement it?Heart failure reviews · 2017Review
- Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients.BMC palliative care · 2017Article
- Early integration of palliative care into standard oncology care: evidence and overcoming barriers to implementation.Current oncology (Toronto, Ont.) · 2016Article
- Spousal Characteristics and Older Adults' Hospice Use: Understanding Disparities in End-of-Life Care.Journal of palliative medicine · 2016Article
- Observational
- Association Between Hospice Use and Depressive Symptoms in Surviving Spouses.JAMA internal medicine · 2015Article
- Palliative care for Parkinson's disease: has the time come?Current neurology and neuroscience reports · 2015Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
goals of workThe goal of this study was to evaluate, at a population level, the association between specialized palliative care services (SPCS) and short- and long-term caregiver outcomes. PATIENTS AND
methodsThe Health Omnibus Survey, a face-to-face survey conducted annually in South Australia since 1991, collects health-related data from a rigorously derived, representative sample of 4,400 households. This study included piloted questions in the 2001, 2002, and 2003 Health Omnibus Survey on the impact of SPCS. Sample size was 9,088 individuals. "Unmet needs," a short-term outcome relevant to the caregiving period during a life-limiting illness, were tallied. "Moving on," a long-term caregiver-defined outcome reflecting the caregiver's adaptation and return to a new equilibrium after the death, was assessed with and without SPCS.
resultsThirty-seven percent (3,341) indicated that someone close to them had died of a terminal illness in the preceding 5 years, of whom 949 (29%) reported that they provided care. SPCS were involved in caring for 60% of deceased patients. Day-to-day caregivers indicated fewer unmet needs when SPCS were involved (p = 0.0028). More caregivers were able to "move on" with their lives when SPCS were involved than when SPCS were not involved (86 vs 77%, p = 0.0016); this effect was greatest in the first 2 years after the loved one's death.
conclusionAt a population level, SPCS were associated with meaningful improvements in short-term ("unmet needs") and long-term ("moving on") caregiver-defined outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.