ArticleGenetic testing2007
Information needs of mothers regarding communicating BRCA1/2 cancer genetic test results to their children.
Article in Genetic testing, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 58 citations in OpenAlex.
- Maternal Communication of BRCA Risk to Adolescent and Young Adult Children: Implications for Supportive Care Intervention.Psycho-oncology · 2026Article
- Families with complex needs: an inside perspective from young people, their carers, and healthcare providers.Journal of community genetics · 2022Article
- Attitudes towards genetic testing and information: does parenthood shape the views?Journal of community genetics · 2020Article
- Helping Mothers and Daughters Talk about Environmental Breast Cancer Risk and Risk-Reducing Lifestyle Behaviors.International journal of environmental research and public health · 2020Article
- Maternal perceptions of BRCA genetic counseling communication processes about disclosing cancer risk information to children and adult relatives.Psycho-oncology · 2018Article
- Development of a Tool to Guide Parents Carrying a BRCA1/2 Mutation Share Genetic Results with Underage Children.Journal of cancer education : the official journal of the American Association for Cancer Education · 2018Article
- Issues Arising in Psychological Consultations to Help Parents Talk to Minor and Young Adult Children about their Cancer Genetic Test Result: a Guide to Providers.Journal of genetic counseling · 2017Article
- Modeling the dyadic effects of parenting, stress, and coping on parent-child communication in families tested for hereditary breast-ovarian cancer risk.Familial cancer · 2016Article
- Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery.European journal of human genetics : EJHG · 2016Article
- Ovarian Cancer and BRCA1/2 Testing: Opportunities to Improve Clinical Care and Disease Prevention.Frontiers in oncology · 2016Review
- Survey on Addressing the Information and Support Needs of Jewish Women at Increased Risk for or Diagnosed with Breast Cancer: The Sharsheret Experience.Healthcare (Basel, Switzerland) · 2015Article
- Women's concerns about the emotional impact of awareness of heritable breast cancer risk and its implications for their children.Journal of community genetics · 2015Article
- Distress and the parenting dynamic among BRCA1/2 tested mothers and their partners.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2014Article
- Specific psychosocial issues of individuals undergoing genetic counseling for cancer - a literature review.Journal of genetic counseling · 2014Review
- Decisional outcomes of maternal disclosure of BRCA1/2 genetic test results to children.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2013Article
- Talking to children about maternal BRCA1/2 genetic test results: a qualitative study of parental perceptions and advice.Journal of genetic counseling · 2013Article
- Life events may contribute to family communication about cancer risk following BRCA1/2 testing.Journal of genetic counseling · 2013Article
- Anticipating the arrival of low-penetrance genetic testing to primary care medicine.Journal of community genetics · 2013Article
- Parenting through genetic uncertainty: themes in the disclosure of breast cancer risk information to children.Genetic testing and molecular biomarkers · 2012Article
- Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors.Journal of medical Internet research · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
Mothers who participate in genetic testing for hereditary breast/ovarian cancer risk must decide if, when, and how to ultimately share their BRCA1 and BRCA2 (BRCA1/2) test results with their minor-age children. One of the primary aides for mothers in making this decision is cancer genetic counseling. However, counseling is limited in how well it can educate mothers about such decisions without the availability of resources that are specific to family communication and genetic testing per se. In an effort to fill this gap and identify mothers most likely to benefit from such resources, surveys were conducted with 187 mothers undergoing BRCA1/2 testing who had children 8-21 years old. Data were collected weeks after genetic testing but prior to mothers' learning of their test results; quantitative assessments of informational resource needs (i.e., speaking with previous BRCA1/2 testing participants who are parents regarding their experiences, reading educational literature about options and what to expect, speaking with a family counselor, attending a family support group, and self-nominated other resources), testing motivations, decision making vigilance, and decisional conflict regarding communicating test results to children were included. Mothers' most-to-least frequently cited information resource needs were: literature (93.4%), family counseling (85.8%), prior participants (79.0%), support groups (53.9%), and other (28.9%; e.g., pediatricians and psychologists). Seventy-eight percent of mothers were interested in accessing three or more resources. In multivariate regression analyses, testing motivations (beta = 0.35, p = 0.03), decision-making vigilance (beta = 0.16, p = 0.00), and decisional conflict (beta = 0.10, p = 0.00) were associated with mothers' need level; mothers with a greater interest in testing to learn about their children's risks, those with more vigilant decision-making styles, and those with higher decisional conflict had the greatest need. In conjunction with enhanced genetic counseling focusing on family disclosure, educational literature, and psychosocial support may promote improved outcomes.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.